Plan for the Day

Introducing RAP Research Active Programme is a module where people with disabilities, service providers and health professionals can learn to do research together a) Based on the UN Convention on the Rights of Persons with Disabilities (2006) b) Enables people with disabilities and their allies to become co- researchers with others c) Creates an informed group of co-researchers to work with d) Opens UL’s campus to diverse learners

RAP at Trinity College Dublin Skype call with colleague from TCD

RAP Module Plan

Week 1 What is Research?

Research Cycle Ethics Approval then Recruit People Gather Stories by Interviews, Focus Groups or Surveys Find Answers Tell People What We Learned Decide on Research Question 7

Week 2 Making Research Work for you This week we did a worksheet in the computer room about TILDA (The Irish Longitudinal Study on Ageing)

Week 3 Your Rights in Research

How does an idea get approved? Research Idea: TILDA Find people to help Write up your plan Create posters letters and consent form Send your plan for review Ethics meeting Get comments back Make changes Invite people to be in your study

RAP Example

Week 4 Designing Interview Questions Part 1: Warm up Part 2: Talk Part 3: Wrap up

Week 5 Doing Interviews

Week 6 Focus Groups

Week 7: Designing Surveys Our research question How do students in RAP like to spend their time? Survey Questions were written to find out: (1) what people do for fun (2) what activities people do alone (3) what activities people enjoy doing with others (4) where people go to do the activities they enjoy most (5) how people get where they want to go (6) what role technology plays in coordinating activities.

Types of Survey Questions  Closed  Open  Scale Response  Ranked Response  Multiple Choice

Sample question from our survey

Week 8 Getting Ready to Talk About What We Learned 1. Invitations 2. Certificate 3. Draft slides 4. Survey

Week 9 Surveys Telling the Research Story with Numbers

Steps to Telling the Research Story from a Survey PictureStep 1. Organising survey numbers 2. Counting the answers 3. Making charts 4. Explaining charts

Survey Question

1: Organise 2: Count P1 Going to the pub P2.duames P3 Hanging in townHolidays P4.Seasidecity P5.Thomond Park P6. Going to night clubCinema P7.Going bowlingCinema P8.Croke ParkCoffe shops Going out in town P9. Coffee shops - with brother Near my house - walkingCinema P10.Sports centreMy own houseParkCinema City centre = Dublin P11. Out for a walk or jogSwimming poolBowling P12. Swimming poolCinemaDublin P13. Going to concerts Being with your friends P14.o2 concertGoing places P15.New placesdancing visiting friends in other countries Tag rugby practice matchesThe Burren Cavin g

3: Make a Table 4: Explain: RAP students like to do sports and socialise most for fun

Week 10 Getting Ready: Practicing our Talk  Making choices together  Made slides about what we liked about having each person in the group  Practiced our talk for today  Did interviews about what we liked and didn’t like about RAP

Week 11 Celebrate by… Telling people about your work

Groups of students presented the slides they created highlighting what they learned in the module Then peer mentors presented individual slides highlighting what they learned through the experience.

What we learned… 1. TILDA 2. Ethics process 3. Working on the computers 4. Getting used to the building 5. Meeting new people – showing respect – waiting your turn to talk 6. How to narrow questions down to make them more specific 7. Learning how to write up questions to ask in an interview 8. Asking permission before you do an interview (ask questions) 9. Group interviews – practice; talked together and went over questions; 10. Okay to say no if you don’t want to answer 11. Icebreakers – how to make them up – collages; word cloud 12. Learned how to make up questions for surveys; You can write open and closed questions…multiple choice, ranked, scaled 13. Critique questions (saying what’s good and what’s not clear about a question). 14. Learned to fill out a survey 15. How to get to places you want to go (bus train, taxi) 16. Learned to design invitations for graduation 17. Picked out pictures to show what we learned in RAP and put them on a powerpoint slide (liked making and using slides) 18. Designed certificates (working together, adding pictures) 19. Learned to count votes to make a decision 20. Learned to make bar charts and learned what it meant; 21. RAP students like bar charts more than pie charts

Award Certificates

Student Name  She is always ready to answer questions  Always has really good answers  Helps keep everyone in order  Very kind  Good sense of humour  Very chatty and friendly Student Photo Here

RAP Peer Mentors

Name of Mentor  So generous  Really good at helping set up and clean up the classroom  So funny and joking with people (and making a joke of Nancy)  Very good at interviewing people and doing roles plays for the class  Takes his time reading and doesn’t go too fast or too slow, just perfect  Good leadership Photo Here

Special Thanks to… Co-facilitators: CoOp Students: Research Assistant

What we did today

Looking Ahead Summer 2013 NNDR presentation in Finland Write paper about what students at UL and at TCD thought of RAP Follow through with Phone App project idea from RAP 2012 grads Link RAP grads who want to get more practice into Inclusive Research Network (next meeting is here at UL on May 23 rd at 11am) Fall 2013 Refine the module and make all learning materials available online Spring 2014 Run RAP again at UL or at a community location with 3 peer mentors Autumn 2014 Embed RAP in a Certificate in Clinical Therapies Consider bringing parts of RAP into new curriculum in Clinical Therapies

Research Means… OPEN AND CLOSED QUESTIONS BAR CHARTS COMPUTERS POWERPOINT SLIDES ANSWERS LISTENING CONSENT LEARNING WHAT MATTERS MOST TO PEOPLE FINDING OUT ABOUT FRIENDS AND FAMILY ETHICS PIE CHARTS GRADUATION SURVEYS EXPLORING INTERESTS TRUST INTERVIEWS TRAINING UNDERSTANDING THE KEY TO CHANGE

Closing Thoughts… Professor Alison Perry Head, Department of Clinical Therapies University of Limerick

Questions?

Time to Celebrate!!!