PFF Teal = MAIN COLORS PFF Green = Light Green = Red = HIGHLIGHT COLORS Light Grey = Dark Grey = Black = PATIENT/CAREGIVER PRE-CONFERENCE KATHLEEN OARE LINDELL, PhD, RN TAKING CARE OF YOURSELF: SHARED HEALTH CARE DECISION MAKING NOVEMBER 12, 2015

PFF Teal = MAIN COLORS PFF Green = Light Green = Red = HIGHLIGHT COLORS Light Grey = Dark Grey = Black = PATIENT CENTERED CARE Caring and compassion were once often the only “treatment” available to clinicians. Over time, advances in medical science have provided new options that, although often improving outcomes, have inadvertently distanced physicians from their patients. “What matters to you?” Barry, NEJM, 2012

PFF Teal = MAIN COLORS PFF Green = Light Green = Red = HIGHLIGHT COLORS Light Grey = Dark Grey = Black = SHARED HEALTH CARE DECISION MAKING SDM is a collaborative process that allows patients and their clinicians to make health care decisions together, taking into account scientific evidence, benefits versus risks, as well as the individual patient’s needs. Active engagement of the Patient and Family Fundamental to improve quality of care

PFF Teal = MAIN COLORS PFF Green = Light Green = Red = HIGHLIGHT COLORS Light Grey = Dark Grey = Black = PATIENT CENTERED CARE IN IPF “a partnership among practitioners, patients, and their families (when appropriate) to ensure that decisions respect patients’ wants, needs, and preferences and that patients have the education and support they need to make decisions and participate in their own care” “involves patient report outcomes (PRO’s) coming directly from the patient without interpretation by a third party about how they feel or function in relation to a health condition and a given intervention” Important for advancement of research Russell, BMC Medicine, 2015