Improving Pediatric Cancer Survivorship Care Through SurvivorLink Ann Mertens, PhD Paula Edwards, PhD.

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Presentation transcript:

Improving Pediatric Cancer Survivorship Care Through SurvivorLink Ann Mertens, PhD Paula Edwards, PhD

2 Research Initiative: SurvivorLink  Agency for Healthcare Research and Quality (AHRQ) grant  SurvivorLink - an IT system designed to support pediatric cancer survivor care in the state of Georgia  Population-based initiative to provide foundation for longitudinal, innovative research 

3 SurvivorLink  Research Goals Increase number of patients receiving recommended late effects screening Improve knowledge of survivor care issues Improve patient satisfaction with care  Provide educational material health care providers patients/families

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9 Next steps for SurvivorLink  Evaluate the utilization and usability of SurvivorLink to facilitate transfer of medical information through critical transitions of care  Revise to improve utility and usability of the website  Expand utilization to all Georgia pediatric cancer survivors