Dr Phil Koczan GP in Chingford Clinical Lead NHS London Programme for IT

Wikipedia Definition A personal health record or PHR is typically a health record that is initiated and maintained by an individual. An ideal PHR would provide a complete and accurate summary of the health and medical history of an individual by gathering data from many sources and making this information accessible online to anyone who has the necessary electronic credentials to view the information.

What does a PHR look like Content controlled by the patient Ease of access by the patient Controlled easy access by clinicians Feeds from existing clinical systems Secure and auditable access with consent from patients Enough coverage to make it of value

Clinical Records Within the NHS Local detailed care record The system used locally by clinicians looking after a patient Shared detailed care records Records shared between clinicians from different organisations looking after a patient Summary Care Record A summary of the key events of patient that will be useful when no detailed care record is available (minimum data to include medication, allergies and adverse reactions)

The Summary Care Record Aims to provide records for patients across England Patients have the right to opt out Initial upload of only the core data of medication, allergies and adverse reactions Additional information can be added by the GP Patient access through Health Space Only clinicians with authority to access the SCR can access the record with patient consent

The Summary Care Record As of 28 th May 29,795,780 patients contacted 250 practices live 1,591,845 records created Future Plans Develop Health Space further Contributions from other care settings Enhance integration with other clinical systems

Conclusion The Summary Care Record has come a long way. Confusion over what is it and the consent model. It is not being shelved. Patients are in control of the information on the system. It is a Personal Health Record in development.