School of Medicine FACULTY OF MEDICINE AND HEALTHCARE Kay Henderson – Patient | Carer Community Member Daphne Franks - Patient | Carer Community Member Leeds Institute of Medical Education (LIME) Embedding the Patient & Carer Voice in Medical Education

 Database ‘membership’ of 180 patients, carers and family  Welcome pack and induction programme  Age range 5 – 87  Approx 65% female  Range of conditions: HIV, Cancer, Diabetes, Mental health  1 full-time permanent & 1 part-time contracted members of staff (Core funded)  Budget  Social events friendships, holidays and marriage! Patient | Carer Community

MBChB overview Admissions Widening participation Prospectus Open days Mini Multiple Interviews (MMIs) Admissions committee Year 2 Patient/carer mentor sessions Communication skills Clinical skills Primary Care: Stigma session Medicine Management (2&3) FOSCE Year 3 IDEALS: Patient Safety Primary Care: Doctors with mental health conditions Primary Care: Communication skills OSCE Innovations in Teaching and Learning Professionalism Ceremony Year 5 IPE OSCE LIME Communication team Health and Safety Committee Health and Conduct Committee Year 4 RRAPID: Clinical skills revision Chronic Disease Management: Patient Experience Cancer and Continuing Care: Patient Experience Theme Day: Substance Abuse OSCE preparation: Breaking bad news Year 1 Campus to Clinic: Introduction Lecture Communication skills: home visit Chronic illness: home visit CtoC: classroom visit E-learning: communication skills Patient/carer mentor sessions Campus to Clinic: CMT (1&2)

GMC Criteria GMC Widening participation Prospectus Open days Mini Multiple Interviews (MMIs) Chronic illness: home visit Patient/carer mentor sessions Communication skills Theme Day: Substance Abuse All teaching activities FOSCE OSCE MBChB Admissions committee Campus to Clinic: CMT (1&2) Communication skills team meetings (1, 2&3) LIME communication team Health and Safety Committee Health and Conduct Committee

Impact  Ensuring that students and staff always consider the patient and carer perspective  Improving the relationship between health professionals and patients and carers  Improving the health and well-being of patients and carers  Improving the design and delivery of health care courses, which will ultimately lead to improvements in the delivery of care by qualified professionals

Small group discussion a)As a patient, relative or carer, has there been something that you thought could have been done differently with regards to the care given? What would that be? b) What might make a patient feel vulnerable in a GP or hospital setting? c) What things do you think matter most to a patient in hospital? (apart from being made well, or as well as possible) d) What things about patients and carers do HCPs find most challenging?

Top ten tips for working with Patients 1.Information up front – maps, parking, fee, ‘get out clause’ etc. 2.Named link who can be contacted 3.Clear signage 4.Refreshments/base room/rest area

Top ten tips for working with Patients continued 6.Briefing – address patient/carer expectations: Q&A 7.Briefing – with a clear explanation of learning outcomes for the learner, who the audience are, setting 8.Debriefing session afterwards 9.Lots of positive feedback where it's due, to increase confidence, with analysis as to why. 10.Peer appraisal - where possible, patients to observe each other's work and learn from it.

In summary We are a community of patients and carers working in partnership with students, educators and clinicians, leading the way locally and nationally in educating the medical profession. We are making a difference by putting real stories at the heart of the curriculum so that patients, carers and their family members everywhere will experience the best possible healthcare Thank you