B ACKGROUND TO PARADES S TEVEN J ONES Slides in this talk present independent research commissioned by the National Institute for Health Research (NIHR) under its Programme Grants for Applied Research funding scheme (RP-PG & RP-PG ). Further support was received from primary care trusts, mental health trusts, the Mental Health Research Network and Comprehensive Local Research Networks in North West England. The views expressed in this publication are those of the authors and not necessarily those of the NHS, the NIHR or the Department of Health.

W ELCOME It is great to be able to present the outcomes of our work across the PARADES programme Initial work on the grant application began in 2006/2007 Development of the five streams was driven by: Service user priorities Key evidence gaps Lack of psychological therapy options for bipolar

D EVELOPMENT Liz Pitt Martina Kilbride Consultation panels Importance of formal involvement of service users at all levels of the programme as: Grant holders Researcher Therapy facilitators Advisor

D EVELOPMENT Consultation also confirmed Need for help with relapse Need for integrated help with anxiety and substance issues Concern about suicide and self harm Concern about who makes treatment decisions This led to five streams we are reporting on today We feel that anchoring the research in people’s lived experience has led to relevant and impactful work We hope that you agree!

NIHR P ROGRAMME G RANT FOR A PPLIED R ESEARCH Awarded £2m October 2008 First major award for research into bipolar disorder funded by the UK NIHR NIHR Disclaimer: This presentation represents research commissioned by the UK’s National Institute for Health Research (NIHR) under its Programme Grants for Applied Research scheme (RP-PG ). The views expressed are those of the author(s) and not necessarily those of the NHS, the NIHR or the Department of Health

PARADES G RANT A PPLICANTS Prof Steven Jones, Spectrum Centre, Lancaster University Prof Fiona Lobban, Spectrum Centre, Lancaster University Ms Debbie Mayes, Spectrum Centre, Lancaster University Prof Richard Morriss, University of Nottingham Prof Peter Bartlett, University of Nottingham Prof Nav Kapur, University of Manchester Prof Christine Barrowclough, University of Manchester Prof Linda Davies, University of Manchester Prof Chris Roberts, University of Manchester Dr Sarah Peters, University of Manchester Ms Sue Saltmore, Manchester Mental Health &Social Care Trust

NHS P ARTNERS Mental Health Trusts - Manchester - Nottinghamshire - Lincolnshire - Derbyshire - Cumbria - Lancashire - Pennine - Greater Manchester West - Mersey Care - Cheshire & Wirral

T HE 5 PARADES W ORKSTREAMS Group Psychoeducation vs. Peer Support 1:1 Anxiety & Bipolar vs. *TAU 1:1 Alcohol & Bipolar vs. *TAU Suicidality & Self-harm Advance Directives Evaluation *TAU = Treatment as Usual RCTs

L EGACY FROM PARADES T RAINING Service User: 10 service users trained & delivered group therapy (Ped / PS) NHS Trust Staff: 16 staff trained to deliver group therapy (Ped / PS) 4 staff trained to deliver Alcohol & Bipolar Intervention (284 hours) Academic Staff 3 staff trained to deliver Anxiety and Bipolar Intervention (249 hours) Successes: NHS Trust rollout, BP UK support group, 3 x PhDs, 1 x MPhil, 6 x Clinical Psychology Doctorate

F EEDBACK FROM P ARTICIPANTS ‘ When you are a person with mental health issues and you feel needed or valued, it is a good thing’ ‘…it’s like I want to do my bit because I have been there and know what it feels like’

S CALE OF P ARTICIPANT I NVOLVEMENT Bipolar Disorder and Relatives (N = 1004) Group Psychoeducation RCT [304] Anxiety and ABLE RCTs [126] Self harm interviews [11] Relatives for suicide interviews [11] Advance directives survey [563] Professionals (N = 674) Group psychoeducation interviews [16] Advance directive survey [658]

P ROGRAMME W EBSITE