Self-care & Retention June, 2012

Visit Pop-up Question What do we mean by Self Care? Self-care and Retention

 Potent ARTs have transformed HIV into a chronic manageable disease  Many similarities to other chronic diseases but also important differences (stigma, drug resistance)  HIV therapy is life long  Treatment strategies must be sustainable  HIV patients have day-to day responsibilities for their care  Providers must support motivation, tools, and skills Aberg J. The Changing Face of HIV Care: Common Things Really Are Common. Ann Intern Med. 2006;145(6): HIV as a Chronic Condition Self-care and Retention

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“The ability of patients with chronic illnesses, in a complementary partnership with their health care providers, to manage the symptoms, treatment, lifestyle behavior changes, and the many physical and psycho- social challenges that they face each day.” A composite of definitions in the literature What is self-care? Self-care and Retention

 Learn about their HIV disease  Develop effective communication skills  Actively partner with providers in decision-making  Practice action-planning and problem solving  Self-monitor symptoms and follow treatment directions  Seek expert medical care and advice  Use family, peer, and community support resources  Maintain emotional and psychological balance  Practice health-enhancing behaviors What is self-care for people with HIV/AIDS? Self-care and Retention

Visit Pop-up Question Do you practice self care? How? Self-care and Retention

Personal. [e.g. disease knowledge, perceived illness, acceptance] Structural [help remembering appointments, transportation] Financial [insurance, public support – housing, food, etc.] For more information about self-care, visit the NQC web site: Self-care and Retention in HIV Care Self-care and Retention

Improve knowledge about HIV; dispel negative beliefs Improve your health literacy – your understanding of HIV care Connect with others who can share information, answer questions and provide support Visit – “Resources Tab” to learn about effective retention initiatives. Things You Can Do to Improve Self- Care – Personal Changes Self-care and Retention

Visit – “Resources Tab” to learn about effective retention initiatives. Reminder calls or texts Transportation or other supports Insurance that enables routine access to health care; know how to use care Things Others Can Do to Support Your Self-care Self-care and Retention

Visit Pop-up Question What do you do to improve your ability to take care of yourself? How do you engage others to support your self-care efforts? Self-care and Retention

Download “Making Sure” at Order Copies:  It’s free  Avilable through the National Quality Center  Use if for your group of HIV+ peers Check Out the “Making Sure” Curriculum Self-care and Retention

 Learn how to define “quality.”  Learn about “clinical indicators” to measure quality care.  Learn problem-solving and communication skills.  Learn to be your own self-care advocate. Download “Making Sure” at Order Copies: A Tool to Help Improve Self-Care Self-care and Retention

Click the Partner Tab Connect with Partners in+care  Learn about retention in HIV care  Learn about self-care  Link to and learn from others living with HIV/AIDS Self-care and Retention

Visit – “Partners” Tab – Partners in+care Toolkitwww.incarecampaign.org Join the Partners in+care Network  notices and updates about Pi+c and in+care Campaign  Provide advice [Pi+c surveys] +Sign up to Be a Partner in Care Self-care and Retention

Directly Connect through Partners in+care on Facebook  Share tips, stories, experiences & resources  Community of people living with HIV/AIDS and allies  Secure and confidential  Join. Send to – Facebook in subject line

Campaign Headquarters: National Quality Center (NQC) 90 Church Street, 13 th floor New York, NY Phone Visit Web - “Partners” tab Sign up for Pi+c Network – “Partners” tab Join Facebook Send to – “Facebook” in subject line