Best Practice – Patient Experience Presented by Emma Robinson NHS England – 12 Dec 2013

FFT – Accessibility for All Workstream There are individuals who face particular challenges with regards to the opportunity of responding to the Friends and Family question. These were identified as: Children & Young People Learning Disabilities/Cognitive Impairment End of life, Neonatal Death & Stillbirth Dementia Equality & Diversity (sight & hearing impairment, language & literacy issues) Health & Justice and Military Health NHS | Presentation to Best Practice Network – 12 December 20132

Approach Linked with Patient Experience colleagues at Bath, Gloucestershire, Swindon, Wiltshire Area Team Sourced existing guidance Sourced easy read Friends and Family Test/Patient Experience feedback forms 3NHS | Presentation to Best Practice Network – 12 December 2013

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Gloucestershire Voices BGSW Area Team engaged with Gloucestershire Voices who are set up to speak on behalf of the wider group of people with learning disabilities Video 5NHS | Presentation to Best Practice Network – 12 December 2013

Documentation Cherry picked best bits and created a draft Easy Read FFT, Patient Guide and NHS Staff Guide NHS | Presentation to Best Practice Network – 29 th November 20136

My Life, My Choice Thames Valley Area Team engaged with My Life, My Choice - a self-advocacy organisation run by and for people with learning difficulties in Oxfordshire Repeated the process with the experts by experience 7NHS | Presentation to Best Practice Network – 12 December 2013

Approach We amended the documentation and then worked with speech and language therapists, clinicians etc. to ask for their feedback and to validate what we had learnt Then we widened the feedback to staff, champions, experts that work with people with learning disabilities for their feedback Thames Valley AT & BGSW AT collated the work together and produced final draft versions of all of the documents These documents along with the guidance and an evidence based report will be presented at a round table event so that this can be tested with early adopter sites in the new year 8NHS | Presentation to Best Practice Network – 12 December 2013

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10NHS | Presentation to Best Practice Network – 12 December 2013