1 It Starts with One: Self-care & Retention April 19, 2012 For Audio: Dial-in#: Participant Code: #

2 Welcome & Introduction Agenda  Welcome & Introductions, 5 mins  in+care Campaign Overview, 5 mins  Self-care and Retention, 15 mins  Learning from Each Other, 15 mins  Promoting Self-care through Partners in+care, 5 mins Conversation and Q&A opportunities throughout webinar

3 At the end of this webinar, you will know more about...  What is self-care  The role of self-care in retention  Practical strategies for using self-care to support retention  How to use Partners in+care to support self-care and retention Welcome & Introduction Learning Topics

4 Welcome & Introduction Ground Rules for Webinar Participation  Welcome  This is a “public event.” If you have confidentiality concerns... -Your names appear on-line in the list of webinar registrants--consider just listening to the audio or viewing the webinar at a later time after it is posted at incarecampaign.org -All webinars are recorded--do not use identifying information when asking questions For Audio: Dial-in#: Participant Code: #

5 Welcome & Introduction Ground Rules for Webinar Participation  Actively participate and write your questions into the chat area during the presentation; we will also pause for conversation during the webinar  Do not put us on hold  Mute your line if you are not speaking (press *6, to unmute your line press #6)  Slides and other resources will be available on our website at incarecampaign.org For Audio: Dial-in#: Participant Code: #

6 Welcome & Introduction Introduce Guests Deloris Dockrey Director of Community Organizing Hyacinth AIDS Foundation New Brunswick, NJ - Michael Hager Manager, TA/Dissemination NQC, NY, NY – Bob Tracy NQC Peer Consultant St. Paul, MN – Mike Maginn Executive Director, Friends of People with AIDS Peoria, IL –

7 The goal of the in+care Campaign is to bring patients back to care and keep others from falling out of care. In+care Campaign Overview Welcome For more information:

8 In+care Campaign Overview A Little More Information about in+care Five Parts

9 The Role of Self-care in Retention What is retention? For more information about retention, visit the in+care Campaign website: Stay in care / Return to care Retention –having a routine for seeing your doctor/health care provider on a regular schedule Doing this persistently – year- after-year-after-year There is a relationship—a seemingly obvious relationship— between regular medical visits and improved health and reduced mortality. Research published in 2010 provides the first data to demonstrate the survival advantage of regular HIV care. [Giordano, 2010]

10 The Role of Self-care in Retention Model for Chronic Care YOU

11 The Role of Self-care in Retention Challenges to Retention & Self-care Personal. [e.g. disease knowledge, perceived illness, acceptance] Structural [help remembering appointments, transportation] Financial [insurance, public support – housing, food, etc.] For more information about self-care, visit the NQC website:

12 Improve engagement & retention through self-care education: [personal] Improve knowledge; dispel negative beliefs High level of health literacy Patient education combined with relationships The Role of Self-care in Retention Education Promotes Retention Visit – “Resources Tab” to learn about effective retention initiatives.

13 The Role of Self-care in Retention Support Promotes Retention Visit – “Resources Tab” to learn about effective retention initiatives. Improve engagement & retention: [structural & financial] Reminder calls or texts Transportation or other supports Insurance that enables routine access to health care; know how to use care

14 Additional Questions? Contact us at The Role of Self-care in Retention Conversation What “supports” work best? Any questions? What self-care strategies do you use to stay in care?

15 Learning from Each Other Stories of Experience Self-care education Resource barriers Lack of experience with routine health care Personal strategies

16 Learning from Each Other Success Stories from the Field Download “Making Sure” at Order Copies: Offer “Making Sure” MCM clients “Making Sure” curriculum / Self-care and advocacy skills Personal definition of quality Introduction to clinical measures of quality Learn about HIV Seeking advice Problem-solving and taking action; practicing health-promoting behaviors Communication skills Finding and valuing support of others peer support /

17 Learning from Each Other Success Stories from the Field Download “Making Sure” at Order Copies: Improve routine visits with HIV care provider and routine viral load measurement Use curriculum to introduce “retention” and clinical measures for “retention” to help assess quality Adapting “Making Sure” for Partners in+care

18 Learning from Each Other Stories of Experience For more information: Contact Mike Maginn – Promoting Self-Care & Retention through...  Health education and self-care skill development  Emotional support Activities include...  Train peer navigators for state of Illinois  3-day training  Prepare for formal or informal system support [i.e. work employment or volunteer peer support] Central IL Friends of People Living with AIDS

19 Learning from Each Other Stories of Experience Activities include...  Variety of tools for reflection & expression  Advocacy skills [ID practical needs, advocacy plan, communication skills]  Therapist, navigator, peer-to- peer experiences & support Promoting Self-Care & Retention by...  Addressing impact that depression, isolation or stress can have on delaying care or inconsistent use of care For more information: Contact Deloris Dockrey – The Wellness Community

20 Learning from Each Other Stories of Experience Visit – Resources Tabwww.incarecampaign.org to learn about effective retention initiatives. What do we do to keep ourselves in care?  I want to strengthen my community. [Mike]  I just need to make sure I can get to the clinic without much hassle. [Bob]  I work on developing good communication and a good relationship with my provider and clinic staff. [Deloris]

21 Additional Questions? Contact us at Learning from Each Other Conversation Any questions? What’s your self- care plan to stay in care? What are some of the common characteristics?

22 Partners in+care Improving Retention through Self-care  Visit Partners in+care web page  Sign-up to join the Partners in+care network  Encourage others to join the network Visit – Partners Tabwww.incarecampaign.org

23 Partners in+care Improving Retention through Self-care  Submit your tips  Describe the strategy you use  Post on Partners in+care web page  Need to be signed up

24 Partners in+care Webinar Series  in+care – Homelessness and Retention – Apr 26 [2 pm ET]  Partners in+care - Sharing the Benefits of Care: Reaching Out to Others – May 24 [2 pm ET]  Partners in+care - Making Retention Easier: Creating Systems that Work – Jun 28 [2 pm ET] Partners in+care Webinar Archive at - Retention: Partners Make It Happen – Mar 22 - It Starts with One: Self-care and Retention – Apr 19

25 Partners in+care What We Will Accomplish Share what we know so we all get better at:  Seeing our doctor and HIV care providers on a regular basis  Reaching out and supporting others so they see their doctors and HIV care providers on a regular basis – especially those who are new to HIV care or who have stopped regular visits  Making sure we all get the full benefit of care and treatment in order to improve our health

26 Sign up to be a Partner! Campaign Headquarters: National Quality Center (NQC) 90 Church Street, 13 th floor New York, NY Phone incareCampaign.org

27 Partners in+care Selected References Cheever, Laura. Engaging HIV-infected Patients in Care: Their Lives Depend on It, Clinical Infectious Disease, 2007; Vol.44, Issue 11, pp Giordano TP, Gifford AL, White AC Jr, et al. Retention in Care: A Challenge to Survival with HIV infection. Clinical Infectious Disease, 2007; Vol.44, Issue 11, pp HIV AIDS Bureau. Self-Management and the Chronic Care Model. HRSA CARE Action. January Rukeyser, Joseph. Making Sure You HIV Care is the Best It Can Be: A Consumer Quality of Care Training Workshop. National Quality Center. June 2002/Revised March 2010.