Southampton Overview Group Launch Your invitation to make a real difference 16 th August 2010

2 Agenda 11:00Coffee 11:10Setting the scene 11:30The programme to date 11:50Individual’s Journey & ‘Forms’ 12:20What do we need to do? 12:50What do you think we should do (introduction) 13:05Lunch 13:40What do you think we should do (workshop) 14:45Review of day 15:00Close

3 Setting the scene Ian Loynes – Chair – Southampton Centre for Independent Living

4 A thought “Nothing about us without us” (Michael Masutha & William Rowland – South African Disability Activists citing an unnamed Eastern European activist – circa 1995 & later, James Charlton 1998) (Later adopted by the Disability Rights Commission in 1999 as a part of the review of the Disability Rights Act 1995)

5 A brief history Anne Meader – Project Executive

6 Common Assessment Framework (CAFA) launched in Hampshire Information Governance Personal Profile Petersfield Pilot Phase two bid and success! CAFA: a brief history…

7 What CAFA means? Information held about me is consistent and correct… My preferences are recorded – and paid attention to… Time is saved when my situation is urgent… People don’t keep recording the same things about me all the time… I have direct access to, and control of, my personal information… The dialogue between me and the ‘professionals’ I deal with is improved

8 Southampton’s role Saqib Yasin –CAFA2 Project Manager

9 What information is recorded? People receive care & support from a lot of different places, for example: Health Services Social Services Friends & Family Voluntary organisations & charities Private providers Most of these keep records… Not all of them share information

10 Hampshire Health Record Doctor Friends & family Hospital Ambulance Volunteer Health care worker Specialist Social care worker Hampshire Health Record (HHR) Provides a place where information can be stored and shared

11 Individual’s Journey & forms that have been developed Perry Jones –Business Analyst

12 What is an individual’s journey? Talk with someone I get what I need Record information My needs change I don’t need help Share information Whatever our background or need, whenever we approach organisations, the ‘journey’ will be the same. This journey may not be smooth! … nor indeed quick! …but the organisations we deal with are designed to support this journey. Ask for help / Advice

Implement plan 13 What do organisations do? Develop & maintain services Receive enquiry Assess situation Plan response Review situation Monitor & support plan All organisations have to do this if they are to support the individual’s journey. Some organisations are better than others in terms of how they do these things.

14 For something that seems so complicated, it’s simple! For CAFA2, we need to remember that it should be simple. We can use this model to be clear about what we are doing. We can use this model to challenge existing ways of working and behaving. Receive enquiry Develop & maintain services Assessment Plan response Implement plan Monitor & support plan Review situation Ask for help or advice Talk with someone Record information Share information I get help My needs change I don’t need help

15 The personal profile

16 What do we need to do?

17 Contact with services Developing people Day to day living CAFA2: Working groups and pilots Agreeing the ‘rules’ about sharing and looking at information Agreeing what information should be shared & where it could be recorded

18 CAFA2: Overview groups Southampton CAFA2 Overview Group CAFA2 Board CAFA2 Pilots and Working Groups

19 What do the pilots need to work on? Sharing information about ‘my’ support. Exploring how a ‘shared care plan’ can be shared with the people involved. Making sure that people are not at risk from sharing to much. Day to day living Contact with services How do people access information. Where is information recorded? How can we reduce unnecessary admissions? Exploring what changes may need to be made to the way we act. Developing people Changing attitudes. Linking with existing training & development groups. Developing new training materials. Using technology to share training materials with all. Supporting individuals to act on what they have learned. The business process + The individual’s journey

20 How we will know if we have been successful? Day to day living People tell us that a ‘shared care plan’ is useful to them. People tell us that they are not worried about their personal information being misused. People are not readmitted to the same place unnecessarily. Reviews help everyone know whether there has been a change to an individual’s situation. Contact with services We can monitor how many times a persons record is viewed. Shared information is stored on the system. We can show how we have changed the way people do things. Employees tell us that they can do their job better. ‘Individuals’ tell us that their experience was good. Developing people New training materials. Links with existing groups. We know what difference has this pilot made. The quality of ‘contact’ gets better for both staff and ‘individuals’. Staff work more effectively. There is a record of how often the training materials have been used and how useful they have been. The business process + The individual’s journey

21 What do you think we should do? Robert Droy –Independent Living Team Leader

22 1: What ideas do we have about pilots? 2: What is already happening that we could work alongside? 5: Who wants to be involved? 4: What are the potential pitfalls? 3: What do we need to do differently? 6: Who should be involved?

23 Lunch break

24 Another thought “We must become the change we want to see.” (Mohandas Karamchand Gandhi, aka Mahatma Gandhi, , Indian statesman and spiritual leader, humanitarian and constitutional independence reformer.)

25 Would you mind giving us some feedback? …“What has gone well…” …”It would have been even better if…”

26 Southampton Overview Group Launch Thank you for your time. Please travel safely.