Building a fair and sustainable care system Simon Gillespie Chief Executive, MS Society Chair, Care and Support Alliance

To enable more people to fully participate in work and our society Demand for social care is exceeding our ability to meet people’s needs The costs will become greater if we don’t act now Reasons for Social Care Reform

Aims of Care and Support Alliance Fair and equitable access to high quality care and support Care and support that is based on needs of individuals

How to build a fair and sustainable care system Seek improvements in social care delivery Ensure that there is a clear legal framework for social care Work to resolve longer-term funding issues for social care

Key recommendations identified by Dilnot Commission A “zero cap” on an individual’s contribution to lifetime care costs for disabled adults aged 18-40, incrementally rising to £35,000 by aged 65 An annual limit of £7,000 on an individual’s contributions to living costs in residential care

Key recommendations identified by Dilnot Commission Raising the savings threshold to £100,000 A national system of eligibility and assessment Expanding preventative support for people with lesser needs Also must be accompanied by increased baseline spending on social care

Key Principles for Social Care reform Freedom Fairness Responsibility

Response of community and voluntary sector Total package: Reform of social care into a modern system, new legislation, plus Dilnot and additional baseline funding Dilnot represents step change in state contribution and what people contribute themselves - Partnership Reform of whole system offers opportunities for new service development

Response of voluntary and community sector Law reform could help to drive development of more personalised and creative services Some challenges for voluntary and community sector delivering personalisation i.e. fragmentation Sustainable funding solution needed for more sustainable commissioning and delivery

White Paper: ‘Caring for our future: reforming care and support’ Draft bill: an historic moment for change Lack of clarity on proposals Proposals undermined by lack of commitment to funding

White Paper: ‘Caring for our future: reforming care and support’ Information and advice Eligibility Portability Personalised care and support

White Paper: ‘Caring for our future: reforming care and support’ Quality Carers Integration Funding

Contacts Secretariat with Carers UK contact: Chair: Simon Gillespie, Chief Executive MS Society –