Specialist Nurse Trainers for Children with Disabilities

Meet the team

Service available to child/YP:- Living in Lincolnshire Registered with a Lincolnshire GP Under care of a Lincoln Hospital Consultant Accessing a Lincolnshire Provider Age 0 – 19 years*

The Need to Service Development Best Value Review (2001) Better Services for Disabled Children in Lincolnshire Lack of training and support Increasing number of children

The Children's Fund Project Proposal (2002) Commenced January 2003 Initially funded until 31st March year age group Suggested max number of children approx 50

Service supports Child with any disability with a physical health need Tracheostomy Gastrostomy NG tube Requiring rectal Diazepam/buccal Midazolam Intermittent Catheterisation Oral suction

Oxygen dependency/therapy Emergency injections (Hydrocortisone) Blood sugar testing (not for diabetes)

Service Priorities Training and support –Cohesive, comprehensive, regularly reviewed Resources –Training material –Information

Beneficiaries Children –Safe, consistent care - evidence based –Involved in training

School Staff/Carers –Opportunity to gain skills –Provide safe, consistent care –Regular reviews

Parents –Increased confidence in school/nursery/transport staff –Involved in training –Reviewing training packages

School Health Nurses/Other professionals –Able to update own practice –Access to information and resources

Service available to School staff/after school clubs etc. Nurseries/Childminders School transport teams Social Care staff and foster carers STRUT House/Haven Cottage Voluntary agencies - AFC, SENSE, STRUT in the Community

Children receiving domiciliary care from LCHS Children entitled to care funded by Continuing Health Care – either PHB or agency carers Children entitled to care funded by Direct Payment (Social care) Short Breaks Providers

Facts and figures Approx 800 children/young people From April March training sessions Over 3000 individuals trained

Referral to service Referrals taken from:- Families Schools/nurseries Social Care Continuing Care Short Breaks Providers

Consent Verbal Consent from parents Written consent/service information Enables access to medical records to ensure child specific training

Training General or child specific Theory Practical demonstration/support Competency assessment Annual review/refresher

Team contacts Office – Mobiles:- Julie Dixon John Gowans Helen Moig Jenna Humphrey Julie Smith Fiona Guinness

Team base St Francis School Wickenby Crescent Lincoln LN1 3TJ

Any questions?

Epilepsy What is epilepsy? Epilepsy is a tendency to have recurrent seizures normally diagnosed after 2 or more seizures Idiopathic/cryptogenic – no known cause Symptomatic – damage to brain from variety of reasons

Epilepsy Support Affects 1:80 children/young people 75 people per day diagnosed in UK 40 types of seizure

Epilepsy Support Impact varies Need for support varies Myths and misconceptions Stigma

Epilepsy Support Risk assessment Adult support Emergency medication