PC-API (Primary Care Asthma Performance Indicators) Teresa To Senior Scientist, Research Institute, The Hospital for Sick Children Professor, Dalla Lana School of Public Health, University of Toronto

Monitoring Primary Care Asthma Performance Brief Background of Asthma Indicators Demo - Using RedCap survey to upload data Sample Quarterly Report Current Status Asthma Advisory Committee; March 1st, 20132

Background 15 primary care asthma performance indicators (PC- API) derived using a modified Delphi approach with a multi- discipline expert panel The PC-APIs are presented in 9 main questions Responses are by point and click or entering a number Feasibility of using this PC-API tool was tested and demonstrated (with 5 sites, 50 prospective patients and 50 retrospective charts) 1. To T, Guttmann A, Lougheed MD, Gershon AS, Dell S et al. Evidence-based performance indicators of primary care for asthma: a modified RAND Appropriateness Method. Int J Qual Health Care Dec;22(6): To T, McLimont S, Daly C, Moores G, Gershon A, Lougheed D. Is it feasible to use indicators to collect data on asthma care performance in the primary care setting? A feasibility study. Prim Care Respir J Sep 21.

Using RedCap Research Electronic Data Capture 4Asthma Advisory Committee; March 1st, 2013

Steps Sign a consent form 2. back the signed consent 3. URL link to PC-API is provided by The only requirement: Access to internet 5Asthma Advisory Committee; March 1st, 2013

URL link The simple with the URL link looks like this: Use the same URL link every time for a new patient record to upload Either save the or save the URL as a bookmark in the browser 6Asthma Advisory Committee; March 1st, 2013

Access RedCap Click on the URL provided: Choose to SUBMIT SAVE AND RETURN LATER 7Asthma Advisory Committee; March 1st, 2013

Submit now or Save for later If you choose to SUBMIT then you are done with that patient record, if you have another one you can click the URL link again, another clean page will be provided If you choose to SAVE AND RETURN LATER then you need to save your validation code and you will receive an to remind you to return later. Click the link provided to return to complete the data entry and submit. The will look like this: 8Asthma Advisory Committee; March 1st, 2013

Quarterly PC-API Report Quarterly report is based on aggregated data, no individual patient level data will be revealed at all We will produce a quarterly report to all participating sites Each site will see their site-specific statistics and the overall statistics If you have less than 6 patient records, no site- specific statistics will be provided, but you will still see overall API statistics 9Asthma Advisory Committee; March 1st, 2013

Sample PC-API Report 10Asthma Advisory Committee; March 1st, 2013

Site physician(s) will need to sign a consent form A URL link will be provided to access the tool Upload each asthma patient’s data by filling out the online PC-API tool using REDCap Patients’ Health Card Number is not required No predetermined number of patient encounters required No deadline or timeline stipulated, you can start/stop anytime A quarterly summary report will be ed to the site Site-specific data will ONLY be sent to the respective site Summary 11Asthma Advisory Committee; March 1st, 2013

Current Status 3 Demo webinars (Nov-Dec): Number invited: 108 (through PCAP distribution list) Sites signed up: 3 Entering data: 3 2 Getting consents signed: 2 4 Considering it: 4 23 Number of patient records to date: 23 12Asthma Advisory Committee; March 1st, 2013

contacts: 13Asthma Advisory Committee; March 1st, 2013