CF and Education: Helping your child achieve academic success while maintaining their health. Sruthi Veeravalli, MSW Social Work Clinician March 12, 2016

What are the accommodations? 1. Give time during the day to take medication 2. Allow a late start to do morning airway clearance therapy 3. Plan to get homework or missed school work when child is ill or in the hospital. This can include extra time for school work. 4. Leniency on attendance rules due to illness or hospitalizations 5. Not limiting access to bathroom or water 6. Allow child to take their own medication, like enzymes 7. Hand hygiene in the classroom. 8. Snack and water to maintain nutrition 9. Sick contacts in the classroom 10. Accommodation for physical activities

504 Plan vs IEP 504 Plan –Section 504 of the Rehabilitation Act of 1973 Prohibits discrimination against an individual due to a disability Specifically used to provide reasonable accommodations based on their disability so that students can access their education IEP –Individuals with Disabilities Education Act (IDEA) A federal law that makes public elementary and secondary schools provide appropriate education for children with disabilities Specifically used for students who’s health condition affects their ability to learn by providing specialized programs and services to help them succeed in school.

What to expect from a 504 plan or an IEP meeting? Who will be there? –You can request anyone who has a stake in your child’s education to be a part of the meeting. If the accommodations do not meet your child’s needs, do not sign the 504 or IEP. –You can request another meeting or postpone to ensure all your child’s needs are being met. Should be reviewed once a year.

Home Hospital Instruction The purpose of home hospital instruction is to ensure a student with temporary disability or illness continues to receive school instruction when they cannot attend school. For example, can be used when recovering from surgery at home or IV antibiotics at home. A teacher is sent to the home or mutually agreed location to provide 5 hours of instruction a week until the student is able to return to school. The goal is to ensure the student keeps up with their peers so that when they return, they will not be behind.

Non-Federally Funded Educational Institutions This can include day cares, private schools, charter schools, religious –affiliated schools. These educational institutions legally do not have to follow the IDEA or Section 504 Students are protected under the American Disabilities Act. –You can request accommodations like those found in an IEP or 504 however these institutions may not necessarily grant the request.

Hospitalizations and School LPCH Hospital School –Accredited through the Palo Alto Unified School District. – Instruction can be given at the bedside once enrolled in hospital school. –School can help with obtaining material from home school. –For planned admissions, it is helpful to bring school work and enroll in hospital school for ongoing instruction To Contact the LPCH Hospital School:

Higher Education Higher education includes a 4-year college, 2-year college, and vocational and trade school. IEP or 504 can transfer from high school to higher education institution. –Register at the Office of Student Disabilities (name varies for each institution). Vocational and trade schools –You may need to speak with administration as they may not have an office of disabilities.

Questions??? Sruthi Veeravalli, MSW