H|D|R|CH|D|R|C Housing and Dementia Research Consortium Housing and Dementia Research Consortium: promoting dementia-friendly design Dr Simon Evans Association for Dementia Studies University of Worcester Extra Care Housing Conference | London | February 2015

H|D|R|CH|D|R|C Housing and Dementia Research Consortium H D R C: research into accommodation and care for people living with dementia Developed by HousingLIN / Housing 21 / Dementia Voice Formally established in 2008, hosted by Housing 21 First Coordinator (Sue Garwood) - July 2010 New Coordinator (Julie Barrett) - July 2011 Hosted by Association for Dementia Studies – September 2014 Steering Group – ADS, Alzheimer’s Society, Anchor, Belong, Extra Care Charitable Trust, Housing & Care 21, Housing LIN, MHA Group, Sanctuary Care & Support, Thomas Pocklington Trust. 80+ members – half are accommodation and care providers.

H|D|R|CH|D|R|C Housing and Dementia Research Consortium H D R C Aims To shape the agenda of research into housing and care to ensure its relevance and usefulness to housing and care providers, people with dementia, their families, significant others, carers and advocates. To deliver ambitious, multi-provider, multi-site research which provides robust, specific evidence on accommodation and care for people with dementia. Providing the evidence base to inform policy, funding and practice in relation to accommodation and care in the UK.

H|D|R|CH|D|R|C Housing and Dementia Research Consortium (Some) HDRC Research Priorities Advantages and disadvantages of different models of Housing with Care schemes for people with dementia. The effect of building and environment on outcomes for people with dementia. Impact of interaction with the outside community. Green Dementia Care. The use of assistive technology support people in housing with care settings.

H|D|R|CH|D|R|C Housing and Dementia Research Consortium Bringing it all together Housing and Dementia Research Consortium Association for Dementia Studies The Kings Fund: Enhancing the Healing Environment - environment

Belong Villages CreweAtherton WiganMacclesfield Warrington

Values at the heart of BelongB E L O N G Belonging to a vibrant community Exceeding expectations Living an active lifestyle Offering support for life Nurturing relationships Giving Respect Being part of a community means everyone is encouraged to contribute in whatever way they wish to their village, working together to achieve a sense of belonging, contentment and fulfilment. At the heart of the Belong ethos is the belief that our customers are entitled to excellent, and we strive to accommodate all needs and requirements by creating a positive environment and a ‘can do’ attitude. Customer of Belong villages are actively involved in every aspect of village life, and we encourage our residents to take advantage of village facilities, which are designed to facilitate our customer’s independence. Belong’s range of services means we can support older people as their circumstances change, from people living in their own homes, through those wanting occasional day care services to those who need continuous support on a household. Whatever the requirement, we can be as involved in our customer’s lives as much or as little as they like. Belong villages are designed to promote interaction through their facilities and open plan layouts. We welcome family and visitors and encourage good relationships throughout the Belong community. Belong puts the dignity, privacy and quality of life of each and every customer before anything else. We take the time to get to know our customers, and each story they tell gives us an insight into their personality, enabling us to understand each customer on a one-to-one basis.

Belong Households

Household living

Household Living Open plan kitchen Residents can participate in meal preparation if they choose to Flexible homely environment Enables residents to enjoy appetising smell of foods All food is prepared on the household Resident involvement is encouraged Assistance on-hand Carers are able to observe and offer assistance in an unobtrusive way

Household Living Open plan areas In ‘Extended family’ sized living spaces Safe access to outdoors Secure balcony and garden spaces No corridors – easy to see what’s going on All residents have their own rooms or suites leading off from the communal part of the household

Household Living Domestic-style front doors Each resident’s room has it’s own domestic style front door The latest technology Resident’s rooms also have the latest ‘smart room technology’ to help detect falls or sudden movements without invading privacy Residents can contribute to every day tasks Residents are able to retain and exercise existing skills and abilities and contribute to the general running of the household

Belong Apartments

Apartments Privacy and community hand-in- hand For the more independent individual or couples, moving to a Belong apartment offers the opportunity of a new start in a light, modern apartment, and all the support that may be needed. -With a choice of one or two bedroom apartment -Designed and built to the highest specification -Available to purchase or rent, plus ‘buy back’ scheme

Belong Facilities The Bistro The Venue The Salon The Exercise Studio

Bistro The licensed bistro services excellent food and snacks at all times of day. Bistros are open to members of the community, as well as providing a great meeting place for visitors to spend time with relatives.

Exercise Studio An equipped gym is available to village members and, at certain sites, a qualified fitness instructor works with residents to improve their mobility and wellbeing

Award winning exercise service Barbara Tait runs our award winning 'Independence through exercise' programme at Belong Macclesfield. She is trained in fitness and has specialised in supporting older people through exercise. Through Barbara's outstanding level of dedication, the service that she introduced at Belong Macclesfield has met with remarkable results; helping older people to maintain their independence and improve their strength, mobility, memory and wellbeing.

Award winning outdoor spaces

Belong at Home

Belong at Home Belong at Home is an affordable high quality service that is designed around customers’ life and needs. We provide support, personal care or simply companionship, to help customers in their home or community. -Support is provided when it’s needed -A choice in who visits -Same friendly faces every day -Expertise in support people with dementia -A ‘nothing is too much trouble’ approach

Experience Days

Experience Days Experience Days are designed to support carers too, either on a regular or ad-hoc basis. Belong Experience Days offer opportunities for meaningful involvement in a range of activities The team is on hand to provide expert support, delivering a refreshing alternative to traditional day care

Admiral Nurse Service – Caroline Clifton

Services offered by the Admiral Nurse Skilled person- centred assessments of the needs of family carers and Belong customers with dementia Provision of a range of therapeutic approaches designed to promote emotional well-being Helping customers newly diagnosed with dementia, and their family carers, to come to terms with this Helping family carers to develop and improve skills in care giving, and to promote best practice Providing customers, carers and family members with an appropriate amount of relevant information that can be easily understood Liaison with other professionals and organisations to ensure that families receive co-ordinated support Providing dementia cafes to help carers to meet each other and provide a safe haven to access advice and support in the community

‘We are Belong villagers’ Listen to our poem. ‘We are Belong villagers’ was penned by renowned UK performance poet, Tony Walsh. Here, he gives voice to the experience of those who live and work in Belong villages.

H|D|R|CH|D|R|C Housing and Dementia Research Consortium HDRC research priorities Dementia friendly design of buildings and the environment Dr Julie Barrett HDRC Research Coordinator Extra Care Housing Conference 2015 H|D|R|CH|D|R|C Housing and Dementia Research Consortium

H|D|R|CH|D|R|C Advantages and disadvantages of different models of Housing with Care schemes for people living with dementia. What different models of Housing with Care (integrated, separated, specialist, hybrid, other) exist for people living with dementia? What, if any, are the differences between the different models in terms of quality of life and outcomes for people with dementia and their carers? Integration vs segregation. Does the stage of dementia on moving in affect the outcomes? What is the role of background support? What are the optimum staffing ratios for each model?

H|D|R|CH|D|R|C Housing and Dementia Research Consortium The effect of buildings and the environment on outcomes for people with dementia There is a lot of anecdotal evidence, this needs to be formalised and the learning applied to different settings. What really works; what are the key design features that impact on people with dementia and the ability to support them effectively? What are the challenges of designing for people with dementia? What does the Housing with Care building design specification offer as compared to sheltered housing, general needs housing and other types of accommodation? What is the optimum size for a Housing with Care setting? What are the effects of different building management systems (e.g. telecare, alarms) for residents with dementia? Could there be some form of kite-marking?

H|D|R|CH|D|R|C Housing and Dementia Research Consortium Impact of interaction with the outside community What is the impact of interaction with the outside local community on the health and wellbeing of residents with dementia in extra care / continuing care settings? The impact of residents going out into the local community as well as the local community coming into the scheme. What is the impact on members of the local community who use the shared facilities? What is the effect on their understanding of and attitude towards people living with dementia? What are the benefits of a community hub and how best to make the most of the opportunities it affords? What are the optimal arrangements around communal facilities inclusive of the needs of people with dementia? The effect of location (urban, suburban, rural).

H|D|R|CH|D|R|C Housing and Dementia Research Consortium Greening dementia care What is the impact of interaction with nature on the health and wellbeing of people with mild cognitive impairment / early stage dementia living in different accommodation settings?

H|D|R|CH|D|R|C Housing and Dementia Research Consortium Dementia friendly design What are your priorities?

H|D|R|CH|D|R|C Housing and Dementia Research Consortium HDRC – more info Website: If you would like to become a member of the HDRC (no fee), please give Julie your address at the end of the session.