MS Society Strategy and the Treat me Right Campaign Sally Hughes Programme Director : Policy & Influencing

Our strategy

Vision and mission Our vision A world free from the effects of MS Our mission To enable everyone affected by MS to live life to their full potential and secure the care and support they need, until we ultimately find a cure.

Principles of developing our strategy Everything driven by the needs, hopes and aspirations of people affected by MS Assessing the world around us – the opportunities and threats for the MS Society Understanding our own abilities – our strengths and weaknesses

Developing our goals Gathering views – what are the important outcomes for people affected by MS Prioritisation survey – almost 3,000 responses Seven new organisational goals

1.Effective treatments 2.Responsive care and support 3.Preventing MS 4.Quality information 5.A strong community, independent lives 6.Supporting families and carers 7.Greater certainty about the future Our long-term goals

Our approach Working alongside people affected by MS Working collaboratively Prioritisation and impact Inclusion UK-wide, national, and local approaches

Access to effective treatments Increase our investment in research to develop new treatments UK-wide programme to increase access to treatments that already exist

Developing and improving services Focusing on the needs of people affected by MS, and the outcomes that matter most Building on the available evidence Leadership and collaboration Working alongside people affected by MS

Mobilising the MS community Building a movement for change Increase awareness and understanding of MS Improve our profile, marketing and communications

Our strategy National and local influencing Information and behaviour change NHS professionals, decision makers & influencers People with MS Better access to treatments

A lottery of treatment

People’s need to be treated right

Campaign launch

Keeping the pressure on

Influencing

Informing and engaging

17,000 #treatmeright mentions 25k – 50k people seen each FB post

NICE work?

What’s next?

Analyse results of survey of pwMS on Sativex and cannabis – over 3,500 responses so far E-action on Sativex launching on publication of final NICE guideline Work with ABN to shape prescribing guidelines for DMTs Prepare for NICE multi-technology appraisal in 2015 National influencing Presentations to regional and local commissioning bodies Creation of action plans for improving access to treatments Local influencing