Aiming High for Disabled Children: improving data Presentation by Karin Lowson, YHEC, University of York Steve Bowring, City of Bradford MDC

Project objectives  What is current state of play  What are commonalities in data collected  Are there incentives for coordinated models of data capture  Identify areas of good practice  Make recommendations:  To improve collection  Collection  planning and delivery

Overview of research methodology  Literature review  Development of tools  Undertaking case studies  Stakeholder event

Literature review  Underpinned case studies  Development of tools and areas of examination  Complemented findings  From which developed data pathway  Not full review: identified necessary information  Embedded in report  Separate report with summary of publications  568 peer reviewed papers identified  165 papers obtained  73 included in review  Key policy documents and evaluations

Schematic data pathway: DiCDaP

Data Pathway: Some Questions  Is the data pathway a useful construct?  Does it usefully link to other cycles?  Does it have other purposes, e.g. a training tool?  Is it relevant to all sectors?

Case studies  To gather a full ‘on the ground’ picture  Anonymity guaranteed  Provided with local report  Eight localities participated  Representative of variety of characteristics  Representatives from Health, Social care and Education  80 interviews and 100 people involved  Wide variety of professionals  Collected documentation

Key themes from case studies  How disability is defined across an area  What and how information is collected and stored  How information is shared  How information is used  Fourteen key findings  Eight recommendations  Few examples of good practice but many of locally effective practice

Key themes emerging from study  What are the incentives for planned and coordinated multi-agency models of data capture and sharing? What are the costs and benefits?  How can use be changed from data collection to planning and delivery? How can a holistic end to end approach be encouraged?  How might the collection and use of data be established on a sounder basis in the future  What are the implications of a national information and IT strategy for local developments?  What structures and level of resource would make a difference?