Simon Evans, Senior Research Fellow University of the West of England, Bristol Key challenges for supporting people with dementia in extra care housing

Simon Evans, Robin Means, Tina Fear (University of the West of England, Bristol) & Sarah Vallelly (Housing 21) Extra Care Housing for People with Dementia

The research methodology Focus on service user views Longitudinal design Qualitative case studies Quantitative tracking study

The findings: a summary High levels of satisfaction A home for life? Supporting independence Providing security

Challenges in the physical environment Design issues Orientation and wayfinding Providing facilities Developing communities

Challenges in the social environment Promoting wellbeing Social interaction

“ Sometimes you feel a little bit isolated sitting in the flat, it's more isolated than sitting in your own house.” Resident, court 1

Challenges in the social environment Promoting wellbeing Social interaction Meaningful activities Family carers

Challenges in the care environment Flexible care and support Models of care Rehabilitation Local policy and practice

The key challenge – providing person centred care Responding to unusual behaviours;

“She’s pulled the alarm cord, she’s been rude, she’s been wandering the corridors; what’s wrong with that, that’s what people do if they’ve got dementia. ” Relative, court 2

The key challenge – providing person centred care Responding to unusual behaviours; Balancing autonomy with risk; Promoting independence;

“ I do occasionally have a little flutter. I’ve been down the shops this morning. Its ideal for me, you see people every day, go out when you want, come home when you want. ” Resident, court 1

The key challenge – providing person centred care Responding to unusual behaviours; Balancing autonomy with risk; Promoting independence; Supporting advanced dementia.

Copies of 'Opening doors to independence' are available, price £25, from Housing 21. A free summary of the report can be downloaded from