Research Networks – opportunities for SLTs Dr Caroline Pickstone, Senior Manager, SY CLRN

The bigger picture for SLTs - FAQs Q How do SLTs find ways to participate in high quality research studies? Q How do SLTs with research in their JD (band 7- 8) deliver this element in line with expectations of commissioners? Q How do we increase/sustain an applied research dimension in the profession? A Networks

Research in NHS – the national picture Health and social care research matters to each and every one of us. It underpins the quality of our health and care services and makes a vital contribution to health outcomes and our quality of life. All of us have the high expectation that we will be offered cutting-edge treatments and world class care when we, or our friends, or family, are ill or vulnerable. Delivering the best possible health and care relies on having the best possible research evidence. Dame Sally Davies, NIHR Annual Report,

NHS is fulfilling its pledge in the NHS Constitution, published in 2009, to ensure that patients, from every part of England, are made aware of research that is of particular relevance to them with 97% of NHS Trusts now contributing patients to studies registered on the NIHR Clinical Research Network Portfolio.

Ninety seven percent of NHS Trusts contributed patients to NIHR CRN studies 1,334 non-commercial studies were initialised on the NIHR CRN Portfolio, which constitutes a 26% increase on the previous year 324 commercial studies were included on the NIHR CRN Portfolio, which constitutes a 36% increase on the previous year 564,698 patients were recruited to research studies, a 24% increase on the previous year. Of these 15,827 patients participated in commercial life industry trials a 7% increase on the previous year. Highlights of the NIHR Annual Report

Do the studies address clinical issues? Trial of WiiTM in STroke TWIST - Does the use of Nintendo WiiTM Sports improve dominant arm function and is it acceptable to patients after stroke Trial of WiiTM in STroke TWIST A longitudinal study of adolescent outcomes and CU in a sample of clinically referred children with ADHD A longitudinal study of adolescent outcomes and CU in a sample of clinically referred children with ADHD A longitudinal study of adolescent outcomes and CU in a sample of clinically referred children with Attention deficit hyperactivity disorder Addressing social anxiety in adults who stutter - Addressing social anxiety in adults who stutter: a pilot study Addressing social anxiety in adults who stutter

A reminder about portfolio research... Large funders, research councils and 140 charities Commercial companies developing applied health research Peer reviewed and funding open to national competition (proxies for quality) Range of disease areas including cross cutting themes

How do Networks support portfolio studies? Cancer Dementia and Neurodegenerative Diseases Diabetes Medicines for Children (not only studies on medicines) Mental Health Stroke Primary Care Comprehensive – Local Specialty Groups, usually led by a prominent clinicians in a field and bringing together staff working with that condition across a network

Success in South Yorkshire 71% increase in number of patients recruited in and growth in new studies Growth in studies involving industry (2nd in UK) Local ambition to be top 10 CLRN AHP Local Specialty Group reviewing studies and developing AHP engagement

Local Specialty groups are pivotal Your CLRN will have a list of groups in your area and the leads They will overview the portfolio Establishing a dialogue with the group is a way of becoming involved in current and future projects uk/about_us/ccrn

Getting involved Barriers cited always include time and money Service support costs are the costs of running the research in NHS Research therefore brings in funding Need accurate costings for SLT involvement in a study

SY CLRN AHP workshop – greater involvement in portfolio research Context Aims Increase managers understanding of the value and importance of R&D in the changing NHS Identify the barriers/develop solutions to local clinical involvement Develop strategies for supporting research