How the MND Association can help. Founded in 1979 7000 volunteers (300 Association Visitors) 170 staff 9000 members 3500 people are directly supported.

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Presentation transcript:

How the MND Association can help

Founded in volunteers (300 Association Visitors) 170 staff 9000 members 3500 people are directly supported Including family and carers

People with MND Family and carers Health and social care professionals People who plan and manage services Who?

Over 600 calls a month from people affected by MND and professionals Helpline

Support Services

Equipment loan Riser/Recliner Armchairsssrs Other communication equipment Suction machines Light writers Riser/Recliners Other communication aids

 MND Care Grant ( application to support service team required) Funding provision of equipment or service  MND Quality of Life Grant (up to £500) Funding to maintain quality of life  Carers’ Grant (up to £500) Funding to maintain quality of life  Young Persons Grant (up to £250) To support young carers/people affected by MND Support grants

Examples Contribution towards renting/purchase of stair lift Assist with adaptations or ramps Help to purchase a communication aid/software Care grant

Examples s upport complementary therapy, chiropody hairdressing respite for carer holiday quality of life intervention – broadband a day out Quality of life grant

medical interventions - respiratory equipment retrospective payments mortgage or other household arrears funeral costs legal assistance emergency healthcare needs If unsure, talk to support services team We don’t fund (?exceptional circumstances)

Online application: Telephone: Support Grant and Equipment Loan

Communication Aids and Wheelchairs dedicated co-ordinators support access to equipment build links with providers and commissioners

A range of guides, booklets, information sheets and web content

Care and professional information

Join our Professionals’ Forum proforum.mndassociation.org

Education  national conference  online learning  regional events  partnerships

Regional care development advisers

Care Volunteers Association visitors Association visitor co-ordinators Care service navigators New roles

Network of branches and groups local support groups newsletter website campaigning fundraising

Questions

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