Leicestershire, Northamptonshire and Rutland Comprehensive Local Research Network Improving the health and wealth of the nation through research: Local support available through the National Institute for Health Research (NIHR) NHfT Conference 27 September 2012 Elizabeth Moss LNR CLRN Senior Manager

Leicestershire, Northamptonshire and Rutland Comprehensive Local Research Network Overview  “Health & Wealth”  NIHR Landscape  Local NIHR Infrastructure: What’s what?!  New and emerging structures  Key priorities & themes  What this really means to you?  How and where to get support?

Leicestershire, Northamptonshire and Rutland Comprehensive Local Research Network “Health & Wealth”  NIHR Purpose: To improve the health and wealth of the nation through research  Government priority

Leicestershire, Northamptonshire and Rutland Comprehensive Local Research Network “Health & Wealth” How & Why?  Research is important for growth because:  Supports life-sciences industry life-sciences industry important for economic growth  Cutting edge research in UK = improved outcomes, earlier  Offers patients the chance to get involved in new treatments/pathways = improved care  Improved outcomes also = lower ongoing costs to improve population health

Leicestershire, Northamptonshire and Rutland Comprehensive Local Research Network NIHR Landscape

Leicestershire, Northamptonshire and Rutland Comprehensive Local Research Network NIHR Landscape: Alphabet soup? NHfT LNR CLRN TV DeNDRoN LNR CLAHRC BRUs RfPB EM- AHSN HoE MHRN CTUs EM-RDS I-CRNs NIHR

Leicestershire, Northamptonshire and Rutland Comprehensive Local Research Network NIHR Landscape: Alphabet soup? NHfT LNR CLRN TV DeNDRoN LNR CLAHRC BRUs RfPB EM- AHSN HoE MHRN CTUs EM-RDS I-CRNs NIHR ORGANISATIONS THAT SUPPORT RESEARCH AND HELP POTENTIAL AND CURRENT RESEARCHERS

Leicestershire, Northamptonshire and Rutland Comprehensive Local Research Network NIHR Landscape: Alphabet soup? NHfT LNR CLRN TV DeNDRoN LNR CLAHRC BRUs RfPB EM- AHSN HoE MHRN CTUs EM-RDS You? Us? NIHR Local Research Networks NIHR Research Infrastructure NIHR Funding & support to get it! The future? I-CRNs NIHR To improve the health and wealth of the nation through research

Leicestershire, Northamptonshire and Rutland Comprehensive Local Research Network  R&D Teams in Trusts – R&D Team at NHfT are the best place to start....  R&D Teams in Trusts – R&D Team at NHfT are the best place to start.... more from them to follow!  NIHR organisations: support studies on the NIHR portfolio – randomised controlled clinical trials of interventions and other well designed commercial and non-commercial studies  LNR Comprehensive Local Research Network (CLRN)  Getting started with studies  Help integrate “doing” research with NHS service delivery  Research governance  Funding advice & guidance, to meet NHS service support costs  Support with recruitment & troubleshooting along the way  All clinical specialties; all care settings Local (NIH)Research Infrastructure

Leicestershire, Northamptonshire and Rutland Comprehensive Local Research Network  Thames Valley Dementia and Neurodegenerative Diseases Network (TV DeNDRoN)  Support the development, set up and delivery of clinical research in the NHS.  In the dementias, Huntington’s disease, motor neurone disease, Parkinson’s disease, and other neurodegenerative diseases.  Heart of England Mental Health Research Network (HoE MHRN)  Work closely with NHS Trusts that run mental health services.  A workforce dedicated to supporting research projects by identifying and recruiting eligible participants  Help research teams find mental health professionals interested in research participation Local NIHR Infrastructure

Leicestershire, Northamptonshire and Rutland Comprehensive Local Research Network  LNR Collaboration for Leadership in Applied Health Research and Care (CLAHRC)  Collaborative partnerships - university and surrounding NHS organisations  Focused on improving patient outcomes through conducting applied health research, followed by.....  Support the translation of research evidence into practice  East Midlands Research Design Service (EM-RDS)  All aspects of preparing grant applications for applied research in health and social care: Advice on which research funding streams Protocol development, evidence, health economics, stats etc. Patient & Public Involvement in research Local NIHR Infrastructure

Leicestershire, Northamptonshire and Rutland Comprehensive Local Research Network  Biomedical Research Units - BRUs  Undertake translational clinical research in priority areas of high disease burden and clinical need.  Three locally – all based in Leicester: Cardiovascular Disease Respiratory Disease (new April 2012) Nutrition, Diet & Lifestyle (new April 2012)  Clinical Trials Unit - CTU  Specialist units with expertise to centrally coordinate multi-centre clinical trials and other well designed studies  Includes: design, conduct, data management, publicity, analysis and reporting of a study  Leicester has a provisionally registered unit Local NIHR Infrastructure

Leicestershire, Northamptonshire and Rutland Comprehensive Local Research Network New and emerging structures  Research network landscape a bit cluttered  Intention to streamline  Proposed new structure by Spring 2014  ICRN: Integrated Clinical Research Networks Large regional coverage: East Midlands region? More organised geography Similar functions as present – research delivery & governance Hopefully same helpful staff  Another new kid on the block - Academic Health Science Networks, AHSNs Goal: improve patient and population health outcomes by translating research into practice

Leicestershire, Northamptonshire and Rutland Comprehensive Local Research Network Key priorities & themes  Focus on participant recruitment  Deliver research to time and target  Commencing research promptly due to streamlined research governance  Big national push on commercial work  Delivering more with less – ensure our processes are “LEAN”  Managing in set and often falling budgets and monitoring finance carefully  Supporting research in a constantly changing NHS

Leicestershire, Northamptonshire and Rutland Comprehensive Local Research Network What does this mean to you?  It is still a good time to get involved in Research  Research remains well supported by DH  Trusts should always be able to cover costs  And in some cases to make money  There are lots of places to get assistance

Leicestershire, Northamptonshire and Rutland Comprehensive Local Research Network  Opportunity to increase research activity at NHfT  Additional support and advice for research related matters  Potential to receive (further) funding for activity  Research Taskforce available for additional support, as needed  Practical guidance to get studies set-up  Help to ensure they deliver What this practically means to you?

Leicestershire, Northamptonshire and Rutland Comprehensive Local Research Network How and where to get support?  R&D Team at NHfT – contacts to follow  LNR Comprehensive Local Research Network Kylie Chapman, Melanie Waring or me –  Thames Valley DeNDRoN Tel: ,  Heart of England MHRN Tel: ,  LNR CLAHRC NHfT CLAHRC Co-ordinator: Rachel Lovesy,  East Midlands Research Design Service Tel:

Leicestershire, Northamptonshire and Rutland Comprehensive Local Research Network Plenty to take in Any questions???

Leicestershire, Northamptonshire and Rutland Comprehensive Local Research Network Improving the health and wealth of the nation through research: Local support available through the National Institute for Health Research (NIHR) NHfT Conference 27 September 2012 Elizabeth Moss LNR CLRN Senior Manager