Dr Rob Hollingsworth Mark Foster Database Update E-Health Insider Awards – Excellence in Major Healthcare IT Development UK IT Industry Awards – UK Public Sector Project of the Year Award Winners

Escalating use of Immunoglobulin treatment Immunoglobulin Product Spend = £148 million per annum

Management of product shortages Support for Ig procurement and monitoring Safety and recall management Information for guidelines review Prescribing audit Commissioning support Services provided by the database

Automated Reporting Reporting provided for each commissioning region Commissioners receive monthly reports of recorded usage Usage reported by Trust and Product (year to date and most recent month) Compared against Trust invoices Commissioning Support

Almost 53,000 patients registered with 62,000 treatment episodes Multiple specialities and 130+ conditions 700,000 separate infusion entries 160 Trust’s submitting data (inc. Scottish and NI Centres) Almost 22 million grams of immunoglobulin recorded 1,600 Database users Database Status Update

Overall usage increase line graph Increasing Annual Usage of Immunoglobulin Usage (g)

Top 20 Conditions (usage) Top 10 Diagnostic Conditions (Usage)

Top 20 Trusts (Usage)

Dashboards Co-ordinating changes Improving the measures Removing redundant measures Updating the database to facilitate production

Remove PID 09- Adverse events documented on the national database with recorded infusions IVIG 09- Adverse Events Documented Reword PID 01 Patients with immunoglobulin trough levels recorded and documented on the national database during the current reporting financial year Numerator : Number of patients in denominator who have immunoglobulin trough Levels recorded and documented on the national database during the current reporting financial year Private patients To be excluded from all dashboard measures Imminent Dashboard Changes

Poster at UKPIN conference Produce a joint report Combine the strengths of both databases Collaboration with UK PIN Registry

Immunoglobulin Database Version Releases Version 5, 5.1, 5.2, 5.3 New servers Higher bandwidth hosting location User interface Flexibility with dates Care Department Links from reports direct to patient record Dosage entry added to follow-up screen Improved automated navigation Ability to search for a diagnosis Dashboard updates Ability to delete treatment episodes Trusts now able to add new users and new forgotten password function Peformance increases e.g. automated infusion upload Mark treatment episodes as paediatric / adult care

Immunoglobulin Database Version Releases Version 5.4 in Pilot Ability to exclude patients from dashboards inc. private patients Flag fields relevant to dashboards including guidance Updated dashboard measures Reports to highlight excluded patients with direct link to exclusion screen Update dashboard guide Enable deletion / editing of dosage entries Enable quick entry of a dosage review where there is no dose change Removed question about dosage change Ability to continue editing or adding to completed treatment episodes Highlight completed treatment episodes when searching Add to options to specify patient as an overseas patient or other In follow-up add option in treatment status for “Treatment not started” Header now includes indication colour and long/short term indicator

Database Updates Roadmap Ongoing dashboard reporting improvementsOngoing dashboard reporting improvements Data quality assistant toolData quality assistant tool New dosage recording methodNew dosage recording method Pilot of Ig pre-authorisation functionalityPilot of Ig pre-authorisation functionality Ability to attach documents to treatment episodesAbility to attach documents to treatment episodes Patient home therapy monitoring - HaemtrackPatient home therapy monitoring - Haemtrack

Haemtrack Patient Home Therapy Information System Successfully universally adopted for the Haemophilia service Over 700,000 treatments entered by patients Allows clinicians to review in real-time patient home therapy entries Mobile Apps for iPhone and Android Support for all products with ability to scan product entries Integrated to the Immunoglobulin Database

Haemtrack Home Therapy

Public website New domain name : domain name : New layout and review of informationNew layout and review of information Feedback welcome!Feedback welcome!

31 Hospitals using the spreadsheet infusion upload 12 Hospitals currently using the follow-up upload 33 Hospitals currently using the Ig request upload Possible upload for home deliveries and outcomes? Automated Data Uploads JAC Ascribe Limited progress incorporating directly into pharmacy systems

The database and the work of Trusts to provide information to it, continues to be crucial to successfully manage the many challenges of NHS Immunoglobulin therapy Conclusion May the force be with you!