NEUROLOGY SURVEY PRELIMINARY FINDINGS

Diagnosed Conditions of Participants

Neurological conditionEstimated number of patients Chronic headache57,000 Epilepsy10,000 Traumatic brain injury3,500 Parkinson’s disease2,500 Multiple sclerosis1,700 Neuromuscular conditions1,200 Other conditions355 Estimated disease prevalence in Staffordshire and Stoke on Trent using Wessex Strategic Clinical Network Data as comparison

Total sample; Unweighted; base n = 102

Total sample; Unweighted; base n = 101; total n = 102; 1 missing

Who was the first person you came into contact with about your condition?

Filter: Stroke; Unweighted; base n = 7

Filter: Epilepsy; Unweighted; base n = 7

Filter: Multiple Sclerosis; Unweighted; base n = 13

Filter: Parkinson's; Unweighted; base n = 30

Total sample; Unweighted; base n = 102

Filter: Stroke; Unweighted; base n = 7; 93% filtered out

Filter: Epilepsy; Unweighted; base n = 7

Filter: Multiple Sclerosis; Unweighted; base n = 13

Filter: Parkinson's; Unweighted; base n = 30

Total sample; Unweighted; base n = 100; total n = 102;

Filter: Stroke; Unweighted; base n = 7; 93% filtered out

Filter: Epilepsy; Unweighted; base n = 7; 93% filtered out

Filter: Multiple Sclerosis; Unweighted; base n = 13; 87% filtered out

Filter: Parkinson's; Unweighted; base n = 28; total n = 30; 2 missing; 71% filtered out

Total sample; Unweighted; base n = 102

Filter: Stroke; Unweighted; base n = 7; 93% filtered out

Filter: Epilepsy; Unweighted; base n = 7; 93% filtered out

Filter: Multiple Sclerosis; Unweighted; base n = 13; 87% filtered out

Filter: Parkinson's; Unweighted; base n = 30; 71% filtered out

Total sample; Unweighted; base n = 102

Filter: Stroke; Unweighted; base n = 7; 93% filtered out

Filter: Epilepsy; Unweighted; base n = 7; 93% filtered out

Filter: Multiple Sclerosis; Unweighted; base n = 13; 87% filtered out

Filter: Parkinson's; Unweighted; base n = 30; 71% filtered out

Total sample; Unweighted; base n = 101; total n = 102; 1 missing

Filter: Stroke; Unweighted; base n = 7; 93% filtered out

Filter: Epilepsy; Unweighted; base n = 7; 93% filtered out

Filter: Multiple Sclerosis; Unweighted; base n = 13; 87% filtered out

Filter: Parkinson's; Unweighted; base n = 29; total n = 30; 1 missing; 71% filtered out

Total sample; Unweighted; base n = 100; total n = 102; 2 missing

Total sample; Unweighted; base n = 102

Filter: Multiple Sclerosis; Unweighted; base n = 13; 87% filtered out

Filter: Epilepsy; Unweighted; base n = 7; 93% filtered out

Filter: Stroke; Unweighted; base n = 7; 93% filtered out

Total sample; Unweighted; base n = 31; total n = 102; 71 missing

Total sample; Unweighted; base n = 99; total n = 102; 3 missing

Co-morbidities (%) EpilepsyParkinson’sMSNeuromuscularChronic headache Respiratory Fractures and falls UTI’s Arthrosis Malignancy Stroke7324 Dementia499 Other

Total sample; Unweighted; base n = 54; total n = 102; 48 missing

Total sample; Unweighted; base n = 55; total n = 102; 47 missing

Total sample; Unweighted; base n = 99; total n = 102; 3 missing

Total sample; Unweighted; base n = 100; total n = 102; 2 missing

Total sample; Unweighted; base n = 97; total n = 102; 5 missing

Total sample; Unweighted; base n = 45; total n = 102; 57 missing