The science of Privacy Andy Dickinson, Dept of Health Informatics Directorate 1

2 Usability System Benefits + Secure data Acceptable costAvailable technology ++

3 Usability System Benefits Secure dataAcceptable priceAvailable technology ++ +

The National Programme for IT 4 Access Control Framework Patient Demographic Service Personal Spine Information Service Spine Directory Service Secondary Use Service Transaction Messaging Service Clinical Spine Application Services supported by Spine

HealthSpace a free, secure online personal health organiser. helps you to manage your health, store health information securely (ie; your weight, blood pressure, cholesterol levels, medications) find out about NHS services near you. anyone can register for a HealthSpace account (must live in England, aged 16 or over, with a valid address)register for a HealthSpace account a HealthSpace Advanced Account is available to you if you live in an area supporting Summary Care Record’s.Advanced Account it allows you to view your Summary Care Record 5

Summary Care Record The Summary Care Record is one element of the NHS Care Records Service (the other element being the Detailed Care Record). It contains key health information; details of allergies, current prescriptions and bad reactions to medicines. Details of any current health problems may be added; summaries of their care and the healthcare staff treating them. 6

7 circa 150,000 HealthSpace ‘Basic Account’ holders 3,300 new accounts created weekly 358 Basic Account holders will be prompted to create an ‘Advanced Account’ HealthSpace Users Question In your own personal circumstances would the benefits of having and using an Advanced HealthSpace account be worth the time and effort of going through the registration process?

8 circa 150,000 HealthSpace ‘Basic Account’ holders 3,300 new accounts created weekly 358 Basic Account holders will be prompted to create an ‘Advanced Account’ 355 will take up the option…. HealthSpace 125 will take their application to a Registration Centre… 39 will activate their account.

9 HealthSpace circa 150,000 HealthSpace ‘Basic Account’ holders 3,300 new accounts created weekly 358 Basic Account holders will be prompted to create an ‘Advanced Account’ 355 will take up the option…. 125 will take their application to a Registration Centre… 39 will activate their account.

10 Patients can ask for sensitive information to be made inaccessible (other than to healthcare professionals they may choose). Sensitive information Healthcare professionals will be aware when a record contains information they cannot see. A healthcare professional can ask a patients’ permission to view information that is hidden. A patients’ wishes can be overridden in certain circumstances (public interest, court order or access by statute)

Summary 11 Balancing Privacy with Usability Security Technology Cost Usability Benefits

“Prīvacy” [Prīvəssi] or “Privacy” [Privəssi] ? 1. ' The one consonant, two consonant rule‘; look at the word, if there is only one consonant following the vowel and the word is longer than 3 letters, or the syllable is not at the end of the word, the vowel is usually long (the sound is the same as the name of the vowel.) Two ‘easy’ decoding methods:- 2. Divide the word into syllables. If a syllable that ends in a vowel (an open syllable), that vowel is usually long, if the syllable ends in a consonant (a closed syllable) that vowel is usually short. 12 Pronunciation