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Use this as Slide 1

WPCC Member Survey Catherine Holliday Centre for Community-Driven Research on behalf of the WPCC Steering Committee 3 May 2017 Use this as your second slide.

WPCC ITALY FRANCE YOUR Greece Slovenia Sweden MEXICO AUSTRALIA JAPAN South Africa Slovenia AUSTRALIA BRAZIL CYPRUS CANADA SPAIN ARGENTINA FRANCE Sweden EUROPE United WPCC THIS IS YOUR Kingdom United States of America ITALY MEXICO BELGIUM Greece JAPAN SLOVAKIA Portugal GERMANY HUNGARY AUSTRIA

WPCC members

WPCC areas of work Advocacy, Awareness and Fundraising Services and Support (including information) Education and Healthcare Professional Training Research 43 37 56 48 Raising public awareness about pancreatic cancer Providing support services for patients, their families/carers Participating in pancreatic cancer educational activities Funding pancreatic cancer research projects 49 38 43 32 Recruiting volunteers/advocates to raise awareness Offering financial support Training healthcare professionals Undertaking or commissioning research to improve services 31 13 20 17 Participating in advocacy or campaigning activities 30 WPCC areas of work Organizing fundraising events 37

Advocacy & awareness How WPCC members advocate 27 20 38 29 29 Advertising & PR Social media Media stories Face-to-face Leaflets/pamphlets

Advocacy & awareness Opportunities to communicate online Family/Care-giver Experience Webinars & Blogs Community forums/ Information days Patient experience Live chats 24 16 13 5 1

Support & information Direct clinical services 9 Counseling, from psychologists or other trained therapists Nursing support Dietary or nutritional support, from trained dieticians or nutritionists Complementary therapy 7 3 7

Support & information 41 WPCC member organizations provide written information about pancreatic cancer 17 provide information over the phone

Education & training 43 participate in educational activities 20 provide health professional training opportunities

Research funding Biology Prevention Treatment Etiology 14 11 11 21 18 Early Detection Treatment Cancer Control Etiology 14 11 11 21 18 5 Research funding

Clinical trials

Use this as the last slide