Living Kidney Donation Kari Rancourt RN BSN Living Kidney Donor Coordinator Pediatric Transplant Coordinator Paired Kidney Exchange Coordinator

Hartford Hospital Transplant Program Quick Facts 1st Living Kidney Donor Transplant 1954 Identical 23 year old twins In 2016 19,061 kidney transplants performed nationally Of these, 5,630 were living donors In this June 4, 1955 file photo, Richard Herrick, left, and his twin brother Ronald, from Northborough, Mass. The identical twin brothers made medical history when Ronald donated one of his kidneys to Richard for a 1954 kidney transplant that was recognized as the world's first successful organ transplant. Richard lived eight years after receiving the transplant. Ronald died Dec. 27, 2010, in Augusta, Maine. He was 79. Living Kidney Donation Hartford Hospital Transplant Program

Hartford Hospital Transplant Program Why Living Donation? Living Kidney Donation Hartford Hospital Transplant Program

Benefits for Recipient Decreases Wait Time Avoids or limits time on dialysis Living Kidney Donation Hartford Hospital Transplant Program

Benefits for Recipient Kidney usually works right away Kidney usually lasts longer Living Kidney Donation Hartford Hospital Transplant Program

Benefits for Recipient Can be scheduled Optimized for donor schedule, recipient health, well rested and fully staffed operating room Living Kidney Donation Hartford Hospital Transplant Program

Hartford Hospital Transplant Program Benefit for the Donor No medical benefit, only risk Positive feelings associated with helping someone in need. Living Kidney Donation Hartford Hospital Transplant Program

Risk of Living Donation Infection Bleeding Pain Scars Bowel Injury Depression Anxiety Hernia Kidney Failure Death Living Kidney Donation Hartford Hospital Transplant Program

Hartford Hospital Transplant Program Myth #1 It is very risky to donate a kidney FALSE While there are risks with any surgery, it is generally considered safe to donate. The evaluation is very thorough to ensure safety In fact, evaluating people for kidney donation has saved lives Living Kidney Donation Hartford Hospital Transplant Program

Hartford Hospital Transplant Program Myth #2 Living Donors need to be related by blood FALSE Patients can find a living donor anywhere Family Friends Coworkers Church members Neighbor Total stranger (Altruistic or non-directed donor) Living Kidney Donation Hartford Hospital Transplant Program

Hartford Hospital Transplant Program Myth #3 Kidney donors have to make major lifestyle changes FALSE After recovering from surgery donors are encouraged to follow a healthy lifestyle Healthy, balanced diet Regular exercise Drink plenty of water They must avoid NSAIDS and IV contrast… that’s it. Living Kidney Donation Hartford Hospital Transplant Program

Hartford Hospital Transplant Program Myth #4 Women can’t have children after donating a kidney FALSE Most women of childbearing age who attempt to get pregnant after kidney donation are just as successful as women of the same age who have never donated. Abdominal surgery in general may cause formation of scar tissue which can impact fertility. Living Kidney Donation Hartford Hospital Transplant Program

Hartford Hospital Transplant Program Myth #5 Kidney donors have a shorter life expectancy FALSE Living donation does not effect life expectancy Living Kidney Donation Hartford Hospital Transplant Program

Hartford Hospital Transplant Program Myth #6 Kidney donors are more likely to get kidney disease FALSE Sort of…. Kidney donors have lower risk as the general population to develop kidney disease… ….but are at a slightly higher risk than healthy people Previous living donors who end up in need of a transplant are given priority on the list for a deceased donor transplant General population lifetime risk for ESRD 3.2%, donor ESRD 0.9%, and non-donor ESRD 0.014% Living Kidney Donation Hartford Hospital Transplant Program

Hartford Hospital Transplant Program Myth #7 The transplant team cares more about the health of the recipient than they do about the health of the living donor. FALSE Donor safety is our top priority Donors have the right to change their minds at any time Living Kidney Donation Hartford Hospital Transplant Program

Hartford Hospital Transplant Program Myth #8 Kidney donation will be a huge financial burden FALSE All costs are covered While it is illegal to accept compensation, it is ok to accept help with out of pocket expenses Travel assistance available to out of state donors Living Kidney Donation Hartford Hospital Transplant Program

Hartford Hospital Transplant Program Who can’t donate? Obesity/Metabolic Syndrome Kidney stones Diabetes High blood pressure Polycystic kidneys Anyone with current kidney disease or at increased risk for developing kidney disease Living Kidney Donation Hartford Hospital Transplant Program

Hartford Hospital Transplant Program Donor evaluation Initial screening Bloodwork 24 hour urine Full day team evaluation Preoperative visit + final bloodwork Living Kidney Donation Hartford Hospital Transplant Program

Hartford Hospital Transplant Program Surgery and recovery Hand assisted laparoscopic nephrectomy 2-3 hours 2-3 days in the hospital 6-8 week recovery Living Kidney Donation Hartford Hospital Transplant Program

Kidney Paired Donation Can be as simple as a two way swap Living Kidney Donation Hartford Hospital Transplant Program

Kidney Paired Donation Or as complicated as….. Living Kidney Donation Hartford Hospital Transplant Program

Barriers to Finding a Donor Discomfort discussing a sensitive subject Fear of asking someone to donate Lack of knowledge about living donation Assuming donors would have already contacted us Screening potential donors Not being willing to accept certain donors Living Kidney Donation Hartford Hospital Transplant Program

Living Donor Champion Program Living Kidney Donation Hartford Hospital Transplant Program

Hartford Hospital Transplant Program Why we need Champions Effects of kidney disease Fatigue Decreased mental acuity Time demands of dialysis Living Kidney Donation Hartford Hospital Transplant Program

Hartford Hospital Transplant Program What is the Program? Two educational sessions and ongoing support group Session I All about transplant All about living donation Educates the Champion so that they are an expert in transplantation Session II How to ask How to use social media How to find a living donor Living Kidney Donation Hartford Hospital Transplant Program

Hartford Hospital Transplant Program Support Group Guest speakers provided Donors and Recipients who have participated in kidney swap programs Previous living donors Successful donor champions Living Kidney Donation Hartford Hospital Transplant Program

Hartford Hospital Transplant Program Questions? Living Kidney Donation Hartford Hospital Transplant Program

Hartford Hospital Transplant Program Living Kidney Donation Hartford Hospital Transplant Program