Novel data source: people living with health conditions

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Presentation transcript:

Novel data source: people living with health conditions Create value from knowledge derived from shared real-world experiences and outcomes Give something, get something Collect Give voice to a person's story Measure Transform story into meaningful data Aggregate Illuminate community trends & outliers Analyze Generate new insights and knowledge Translate Share knowledge to improve lives

Conditions we are starting with and why... Ambiguous diagnosis & management Highly variable experience often best described by patients Unclear biology (immune, hormone, CNS) Largely non-genetic Responsive to health, behavior, environmental change Standard of care unclear and easy to improve High unmet need Value in centralizing care learning Syndromic Conditions Multiple Sclerosis Mood Lupus Rheumatoid Arthritis Fibromyalgia Parkinson's disease Rare Conditions ALS Hunters