Whole System Whole City Approach to Improving the Cancer Journey Routes to Success: Whole System Whole City Approach to Improving the Cancer Journey Macmillan Cancer Support in partnership with… Sandra McDermott, ICJ Programme Manager Judith Mabelis, Macmillan Evidence Officer

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Our strategy needs to reflect the shift in the shape of survival patterns…2030

Why ICJ? Understanding needs

Person at the centre of the whole system

Barriers All from the NHS: HNAs were already being done in the NHS Patients would not accept someone from LA carrying out the HNA Did people with cancer want this service? The NHS would be swamped with unmet need Project Manager did not have a clinical background or professional credibility

Whole system, whole city Partners and partnership are fundamental in the success of ICJ. All partners contribute in different ways from: Macmillan providing main funding of £3.2 over 5 years to develop the service – additional funding from PCUK, the Beatson Charity, Boots sponsoring the ICJ development managers salary, Wheatley Housing Group seconding a housing professional to the team to deal with all housing related issues Strathclyde Passenger fro transport agreeing to make sustainable the patient transport service for PABC to get them to their cancer treatment SSE – energy action Scotland providing £80k pa to alleviate fuel poverty for PABC NHS baseline research and agreeing to share data

Innovations Data sharing ISD CRM and mobile working GP pilot Pharmacy pilot Patient transport Housing support – prevention of homelessness Carers support Addressing fuel poverty Accredited SVQ training and support link officers 3 Macmillan gardens Macmillan café – social enterprise

ICJ in numbers 3,012 referrals received since 2014 77% of clients from Glasgow’s most deprived 12,627 concerns identified using the HNA tool 8,661 onward referrals to 238 agencies (10% NHS) 36% of carers identified carers assessment £5 million in Financial gains delivered Vocational Rehabilitation reduction in 20 days absence for employees Housing (in 1st year): 172 dedicated housing support needs 23 PABC prevented from losing their home, 30 re-housed due to medical needs, 119 supported to stay in own home

Evidence: Service users ‘’The work you do the hope you give people with cancer and the support in the feeling you are not facing cancer alone cannot be measured’’ Evidence: Service users 93% agreed that support from their Link Officer had reduced their feelings of isolation 89% agreed they were better able to self manage ‘‘’Didn’t know how I could continue without ICJ as I was giving up hope of reaching Christmas, now I think I can ‘’The best advice that I can give anybody who has had a diagnosis of Cancer is to take up the invitation to meet with the ICJ team and see how they can support you and your family in so many different ways’’

Independent Evaluation Napier University, Prof Austyn Snowden and Jenny Young Interim report, July 2016: ‘’ ICJ has transformed cancer care in Glasgow’’ ‘’ ICJ is helping people who need it most’’ October 2017 report: programme data, experiences of service users, the wider culture and consideration of costs (and savings)created by ICJ Does ICJ demonstrably improve quality of life? How ICJ is experienced by: Patients and carers The service providers The wider culture

Scottish Government. Beating Cancer, Ambition and Action (2016) “The Improving the Cancer Journey experience in Glasgow is an example of how an integrated approach to health and social care can lead to an improvement in quality of life, person-led post-treatment rehabilitation and ability to self-manage.”

ICJ challenges for discussion Any ideas as to how we can improve ICJ in Glasgow? How do we deal with increased demand? Risk stratification Volunteers Should our focus only be on cancer? How do we future proof ICJ?

Report on Macmillan website Sandra.McDermott@glasgow.gov.uk Jmabelis@macmillan.org.uk Report on Macmillan website @ICJGlasgow