NAACCR and caBIG® Interoperability Lewis J. Frey, PhD Lewis.Frey@HSC.Utah.edu

Objectives Provide an overview caBIG® and interoperability Show a specific caBIG case with NAACCR standards Discuss the implications of caBIG interoperable NAACCR standards

Information tsunami and the tower of Babel The Information Tsunami The ever increasing and overwhelming volume of data Multitude of data sources (clinical, genetic, epidemiologic, etc…) Material from: https://cabig.nci.nih.gov/ and caBIG Nursing Overview.ppt Tsunami: http://commons.wikimedia.org/wiki/Image:Tsunami_by_hokusai_19th_century.jpg. This image (or other media file) is in the public domain because its copyright has expired. Tower of Babel: http://commons.wikimedia.org/wiki/Image:Confusion_of_Tongues.png. This image (or other media file) is in the public domain because its copyright has expired. A Research Tower of Babel Each research community speaks its own scientific “dialect” resulting in a confusion of tongues Integration is critical to achieve understanding & synthesizing findings for discovery Material adapted from: https://cabig.nci.nih.gov/

National Cancer Institute (NCI)’s cancer Biomedical Informatics Grid (caBIG®) “Connect scientists and practitioners through a shareable and interoperable infrastructure” “Develop standard rules and a common language to more easily share information” “Build or adapt tools for collecting, analyzing, integrating, and disseminating information associated with cancer research and care. “ “The mission of caBIG™ is to develop a truly collaborative information network that accelerates the discovery of new approaches for the detection, diagnosis, treatment, and prevention of cancer, ultimately improving patient outcomes.” caBIG is an initiative to connect scientists and practitioners with standards based tools and services to ultimately improve patient outcomes. 1. About caBIG™ https://cabig.nci.nih.gov/overview accessed July 25, 2008 4

caBIG® Interoperability Reciprocal use of system resources through models and services Models express the meaning of communication Stravinsky’s “Rite of Spring” causes a riot at premiere Services express the means of communication Beatles’ “I want to hold your hand” on 8-track tape

Why caBIG® Interoperability? Addresses information tsunami and the tower of Babel Transmit cancer surveillance data Secure Efficient Timely Avenue to expand registry information Clinical Biological Genetic

caBIG Resources

NAACCR CancerID in caDSR NAACCR standards in the cancer Data Standards Repository (caDSR) - Beth Schmidt and Lori Havener

NAACCR CancerID in caDSR

CancerID Enterprise Architect (EA)

CancerID Enterprise Architect (EA)

CanerID caAdapter

CanerID caAdapter

CanerID caAdapter

CancerID Elements on Grid

Utah NAACCR Data Services

Benefits of caBIG® Interoperability Latency Services to pass data between providers and registries on the grid Bypasses “sneaker net” Quality Services to assess data quality while it is still at the provider’s site Goal is to reduce follow-back

Conclusion caBIG provides a process to converge on a common understanding for efficient information exchange. Through reciprocal use, you can use the work of others to advance your work. NAACCR standards are already part of caBIG. Latency and quality of NAACCR data can be improved by building on the caBIG system.

Funded in part by the NCI caBIG Initiative caBIG Community Acknowledgements Funded in part by the NCI caBIG Initiative caBIG Community Dianne Reeves Mary Cooper Many others NAACCR Community Beth Schmidt Lori Havener University of Utah Antoinette Stroup (Utah Cancer Registry) Martin Cryer Ron Price