TRAJECTORIES IN THE COURSE OF LIFE SATISFACTION IN PEOPLE WITH SPINAL CORD INJURY Christel van Leeuwen, Marcel Post, Trynke Hoekstra, Lucas van der Woude,

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This article and any supplementary material should be cited as follows: Smit CA, Legemate KJ, de Koning A, de Groot S, Stolwijk-Swuste JM, Janssen TW.

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TRAJECTORIES IN THE COURSE OF LIFE SATISFACTION IN PEOPLE WITH SPINAL CORD INJURY Christel van Leeuwen, Marcel Post, Trynke Hoekstra, Lucas van der Woude, Sonja de Groot, Govert Snoek, Dineke Mulder, Eline Lindeman

(Quote Marc de Hond in his book ‘I found out that also with my SCI I can be succesful, healthy, vital, independent, handsome, cheerful, and happy’ (Quote Marc de Hond in his book Power: The new life of an optimist)

“It is so difficult to accept this terrible life” (Documentary: In my dreams I walk)

Central question Are there differences in the course of life satisfaction after SCI between individuals?

Cohort study

Measurements Measurement N When? T1 225 Active rehabilitation: moment that a person could sit for 3–4 hours T2 155 3 months after start T3 198 Discharge inpatient rehabilitation T4 156 1 year after discharge T5 99 2 years after discharge T6 142 5 years after discharge

Life satisfaction instrument What is your quality of life at the moment? (1= very unsatisfying, 6= very satisfying) Is your quality of life at the moment worse, equal or better than before the SCI? (1= much worse, 7= much better)  Sum score of both questions (range 2-13)

Methods Latent Class Growth Mixture Model Based on regression- and structural equation models. Muthén LK, Muthén BO. Mplus User’s Guide. Sixth Edition. Los Angeles, CA: Muthén & Muthén 1998-2010:197-232.

Five life satisfaction trajectories

Conclusion Five different life satisfaction trajectories Two risk groups: low life satisfaction, deteriorating Monitoring during rehabilitation can help to identify persons at risk for poor long-term adjustment

In Archives of Physical Medicine and Rehabilitation volume 92, February 2011, p. 207-213 Trajectories in the course of life satisfaction after spinal cord injury: Identification and predictors Christel M.C. van Leeuwen, MSc Marcel W.M. Post, PhD Trynke Hoekstra, MSc Lucas H.V. van der Woude, PhD Sonja de Groot, PhD Govert J. Snoek, PhD Dineke G.A. Mulder, MD Eline Lindeman, PhD Correspondence: c.v.leeuwen@dehoogstraat.nl