Transitioning Spina Bifida Patients from Pediatric Rehabilitation Goals to Adult Rehabilitation Purpose Samuel R. Rosenfeld, M.D. CHOC Childrens Hospital Rancho Los Amigos National Rehabilitation Center 27 June 2016
Disclosure Consultant, MediCrea Spine I have no potential conflicts with this presentation
Sacral Myelomengocele 1994 Normal Function Few Complications Uniformly do well The “Lucky” Ones
Transitioning to Adulthood Yearly evaluation with interdisciplinary team evolution to the “medical home” Prevention and treatment of pressure sores Socialization and independence Education and vocational counselling Urologic care Maintain orthotics and equipment
Goals for Quality Adult Spina Bifida Care Seamless transition to adult providers Ensure quality, value Ready access to appropriate health care Define and ensure outcomes Provide proactive care Accountability
Interdisciplinary Adult Clinics “Medical Home” to provide comprehensive care Define and measure performance metrics to assure quality and value Align community, healthcare providers, employers, and education goals Technology solutions to develop a “Clinical care Network”