Cystic Fibrosis Educational Curriculum . Cystic Fibrosis Educational Curriculum Sofhia Ytuarte University of Arizona Pediatric Pulmonary Center Nursing Trainee June, 2015

About the Project Request from a parent to provide education during the spirit week CF Education given at Pomerene Elementary School Power Point Presentation with visual aids & demonstrations Handouts & videos for bell work Needs assessment and presentation evaluation developed after the presentation was delivered

Needs Assessment UAPPC Needs Assessment with logo (1).docx

Needs Assessment Results Unsure who provides care for student with CF Requested method of education for faculty power point Requested method of education for students power point, presentation, games, materials How to provide education entire school and address the particular grade

Results of Presentation Assessment Overall presentation was helpful, beneficial for school, students, and faculty Faculty did not know what CF was prior to presentation Gained an understanding of what CF is after presentation, learned something new about CF Educational tools were appropriate Students gained an understanding of what CF is after presentation Most beneficial results of the presentation Better understanding of CF and long term effects Compassion and patience for the student with CF

Cystic Fibrosis Educational Curriculum UAPPC Cystic Fibrosis Educational Curriculum.docx

Parent Survey CFParent Survey.docx

Parent Survey Results 1st 2nd 3rd 4th 5th 6th 7th 8th 9th 10th 11th PreK/K 1st 2nd 3rd 4th 5th 6th 7th 8th 9th 10th 11th 12th Total Public/ Charter 4 1 3 2 16 Private Want education 15 Do not want education Unsure on education

Parent Survey Results Information parents want included in curriculum Educating teachers about CF Do not confuse CF with asthma Life long disease How to handle/react to students with CF Infection control for the classroom Educating students about CF (What it is) Importance of medications & the need to leave the classroom CF and cough are not contagious/they are not sick How kids with CF stay healthy Children with CF are not different

Parent Survey Results Information parents do not want included in curriculum Discussion about death

Moving Forward  CF newsletter: If you have a child or children with CF, what is the most important thing(s) that you would want to see in a curriculum presented to students and teachers?  Distribution of survey to school nurses.

References Center for Disease Control and Prevention. (1995). Facts about cystic fibrosis. (NIH Publication No. 95-3650). Retrieved from http://www.cdc.gov/excite/ScienceAmbassador/ambassador_pgm/lessonplans/high_school/Am%20I%20a%20Carrier%20for%20Cystic%20Fib rosis/Cystic_Fibrosis_Fact_Sheet.pdf Chilman-Blair, K., & deLoache, S. (2011). What’s up with beth? Medikidz explain cystic fibrosis. Medikidz: London, UK. Chilman-Blair, K., & deLoache, S. (2011). What’s up with justin? Medikidz explain nutrition in kids with cystic fibrosis. Medikidz: London, UK. Cystic Fibrosis Foundation. (2015). Retrieved from http://www.cff.org Cystic Fibrosis Research Inc. (2015). Retrieved from http://www.cfri.org/educate.shtml Education.com. (2015). Retrieved from http://www.education.com Edupics.com. (2015). Retrieved from http://www.edupics.com Elevate education. (2015). Retrieved from http://uk.elevateeducation.com Home Science Tools. (2015). Retrieved from http://www.hometrainingtools.com/lung-volume-kit Johns Hopkins Cystic Fibrosis Center. (2015). Retrieved from http://www.hopkinscf.org/ Kids Health. (2015). Retrieved from http://kidshealth.org/kid/ Kids Science Experiments. (2015). Retrieved from http://www.lovemyscience.com/balloonlung.html Science Kids. (2015). Retrieved from http://www.sciencekids.co.nz/experiments/lungvolume.html The teachers corner. (2015). Retrieved from http://www.theteacherscorner.net/