DFA Overview Presentation

The Growing Need As you know there is a growing need for dementia friendly efforts throughout not just the US but world wide. By 2025 the number of people age 65 and older with Alz disease and other dementia’s is estimated to reach 7.1 million. Nearly 60% of people with dementia live in their own community homes and 1 in 7 live alone. 85% of unpaid help (an average of 22 hours per week and valued at about $218 billion annually, is provided by family members. Due to caregiving responsibilities, businesses are losing 34 billion annually in revenue and productivity

Dementia Friendly Community Response to the Need: Dementia Friendly Community The Dementia Friendly America initiative provides a system of technical assistance and tools and resources to assist communities and individuals in taking action to improve community and system capabilities, optimize the health, well being and involvement of people with dementia and their care partners, and support them to continue in their roles. Every part of the community plays a role and can work together to take steps to create a dementia friendly culture. Businesses, such as banks and financial and legal services support customers with dementia and employers support employees who are caregivers Health care systems promote early diagnosis and options for ongoing care and support Communities of faith that provide welcoming and engaging environments for those with the disease and their caregivers Local governments plan and implement housing, transportation, public spaces, and emergency response that enable people with dementia to thrive in the community Neighbors and community members that are understanding and supportive to those around them, including individuals with cognitive impairment Residential care and community based supports offer a range of services to maximize independence and support ongoing community engagement with a variety of options adapted to cognitive decline.

Dementia Friendly Communities Video This short video can be found on our website and provides an animated explanation of what the process of working toward dementia friendliness could look like in a community. To play video go to DFA website: http://www.dfamerica.org/overview-2 (NOTE—unable to link to video from slide)

Testing Ground: Minnesota Results Awareness and education: Dementia Friends Caregiver supports New, meaningful community engagement opportunities (arts, music) Cross-Sector Engagement and Training: business, government, law enforcement, youth, first responder and faith Health system adoption of optimal dementia care practices The Dementia Friendly America initiative is based on Minnesota’s ACT on Alzheimer's, a successful statewide, volunteer-driven collaboration of medical, academic, community, government, business and nonprofit stakeholders from across the state. Developmental evaluation of these communities has shown an increase in services and resources that are supportive of people living with dementia, an increased awareness of dementia and effective responses from those living in communities undertaking this effort, and a greater sense of confidence for those living with dementia and/or their care partners. Since 2011, 43 communities have come together to prepare for the personal, social, and budget impacts of dementia by addressing community needs and increasing support for people impacted by dementia. Another 7 communities will join the effort in the coming months

Twitter @dfamerica_ dfamerica.org Families and communities in every city, town, and rural area in the U.S. are feeling the impact of dementia. Over five million Americans--one in eight people age 65 and older and one in three age 85 and older--is living with dementia and they are supported by 15.5 million family members and friends. The Dementia Friendly America initiative is a multi-sector, national collaborative of over 35 leading organizations that are catalyzing a movement and set of best practices to foster “dementia friendly” communities across the United States to improve opportunities and outcomes for a growing number of people with dementia, their families and care partners. Twitter @dfamerica_ dfamerica.org

Community Update

DFA National Participants The Dementia Friendly America initiative is led by a coalition of over 35 national organizations that represent different aspects of community. These include but are not limited to: health care, philanthropy, emergency and first response, clergy, business The sample of partner organizations that you see here have national networks, affiliates, chapters, or constituents that help to implement dementia friendly efforts in communities across the country ABA | Bank of America | CFPB |Eli Lily |The Global CEO Initiative |The IACP NACo | World Young Leaders Federal Liaisons: ACL, ASPE, CDC, HRSA, IHS, SSA

Dementia Friendly America Initiative Initiative Goal Foster dementia friendly communities across the US The Dementia Friendly America initiative has set out to foster dementia friendly communities across the country. To do so, DFA has created a robust set of resources that help all communities work towards dementia friendliness. The outcomes we hope to see from fostering dementia friendly communities are three-fold: Community capacity to support those with dementia and their care partners System capacity to support those with dementia and their care partners Lastly and most importantly, enhanced quality of life and other positive outcomes for those with dementia and their care partners

Organizing to Meet the Goal: Web-based Tools and Resources Here you will see a snapshot of our website. The DFA website includes sector guides, provider tools, a community toolkit and other guidance for communities working towards becoming dementia friendly. Our website includes sector guides, provider tools, a community toolkit and other guidance for communities working towards becoming dementia friendly.

Alignment with Age-Friendly We also work to align DFC efforts with age friendly efforts and provide resources to help in this regard Our website includes sector guides, provider tools, a community toolkit and other guidance for communities working towards becoming dementia friendly.

Community Web-Based Resource The Dementia Friendly America initiative provides a system of technical assistance and tools and resources to assist communities and individuals in taking action to improve community and system capabilities, optimize the health, well being and involvement of people with dementia and their care partners, and support them to continue in their roles. Every part of the community plays a role and can work together to take steps to create a dementia friendly culture. Businesses, such as banks and financial and legal services support customers with dementia and employers support employees who are caregivers Health care systems promote early diagnosis and options for ongoing care and support Communities of faith that provide welcoming and engaging environments for those with the disease and their caregivers Local governments plan and implement housing, transportation, public spaces, and emergency response that enable people with dementia to thrive in the community Neighbors and community members that are understanding and supportive to those around them, including individuals with cognitive impairment Residential care and community based supports offer a range of services to maximize independence and support ongoing community engagement with a variety of options adapted to cognitive decline.

An All-Sectors Approach Every part of community has a unique role in contributing to dementia friendliness. Taking an all sectors approach is a way to build engagement across many parts of the community.

Example Sector Guide Business Banks and financial Community-based supports Faith communities Health and long term care Legal and advance planning Local government (planning, emergency response, law enforcement) Neighbor and community members Every part of the community has a unique role in meaningfully supporting people with dementia and their family and friend care partners. Sector guides provide information, resources, and actions that specific sectors can take.

Community Toolkit Phases Convene key community leaders and members to understand dementia and its implications for your community. Then, form an Action Team. Engage key leaders to assess current strengths and gaps in your community using a comprehensive engagement tool. Analyze your community needs and determine the issues stakeholders are motivated to act on; then set community goals. ACT together to establish implementation plans for your goals and identify ways to measure progress. Our web based resources can be found at dfamerica.org where we provide content geared to all sectors of community (as mentioned on the previous slide) and a toolkit that guides the process and action at the ground level This 4-step toolkit guides the community process with enough structure to help groups come together and create a shared agenda but it’s flexible enough in that it allows communities to define their own goals and approach the work in a way that’s most suitable for each unique community. (There is no obligation to use the toolkit – it’s simply available to those who find value in it)

Screenshot of Action Phase 1 on dfamerica.org

The Action Team In the initial phase of the toolkit process, the community will convene the Action Team, which will consist of a host of individuals from a variety of sectors. Although we suggest that a community strives to engage all sectors of community, the work can move forward if they have (at a minimum) engagement from the health system, the public sector, and at least one other sector of community (e.g. faith, business, banking, legal services, etc.) A critical factor for Action Team formation is the participation and engagement of people living with dementia and their families and care partners.

Screenshot of Action Phase 1 on dfamerica.org

Screen shot of Action Phase 2 on dfamerica.org

Screen shot of Action Phase 2 on dfamerica.org

Screen shot of Action Phase 3 on dfamerica.org

Screen shot of Action Phase 3 on dfamerica.org

Screen shot of Action Phase 4 on dfamerica.org

Screen shot of Action Phase 4 on dfamerica.org

Momentum Rising As you can see by the media coverage we have had over the last year, momentum IS rising.

How are other states approaching this work? Sector based training and adoption of dementia friendly practices Governmental Champion and Sector-Based Training Team Sectors Adopt Practices Sector based training and adoption of dementia friendly practices

How are other states approaching this work? Local community activation and toolkit implementation Technical Assistance Mechanism for Communities Local Communities Implement Toolkit Local community activation and toolkit implementation

Community Capability: Care Partner Support and Family Health Desired Impact: What are we aiming for? Community Capability: Adoption of dementia friendly practices within and across all community sectors (e.g., faith, business, government, health care) Person with Dementia—Well-Being Care Partner Efficacy Care Partner Support and Family Health System Capability: Adoption of optimal dementia care and supports in health, long term care and community services This is our desired impact and potential evaluation design. We currently have a team planning around measured impact and evaluation.

Gauging Progress This is our desired impact and potential evaluation design. We currently have a team planning around measured impact and evaluation.

Dementia Friends USA This program engages individuals in the dementia friendly movement and will foster DFA goals by: Raising awareness and reducing stigma Encouraging the adoption of dementia friendly practices Engaging individuals through training and participation in an online community wherein people view sector-specific video shorts that raise awareness about and provide education on approaches to effectively interact with people living with dementia. DFA is also the U.S. licensee of the UK Dementia Friends program. We introduced the program in January 2017

dementiafriendsusa.org Dementia Friends USA Home page

Dementiafriendsusa.org

Dementiafriendsusa.org

State Licensure

Contact for Questions Contact: info@dfamerica.org @dfamerica_