East Sussex Autism Partnership Board Thursday 25 February 2016 Keith Hinkley Director, Adult Social Care and Health

Minutes of last meeting: 4 June 2015 Matters arising Key Updates and Information

Proposed forward agenda - 2016 23 June 2016 Children and Young People: Education Transition CAHMS WRAP (developing resilience) 20 October 2016 Criminal Justice/Hate Crime Family Support: Support for carers SIBs Short term breaks/respite February 2017 Training overview Employment Transforming care Autism Alliance Ongoing items for discussion: SAF; Think Autism; policy development

Key updates and information Richard Lewis

Key updates and information: Safe Place Scheme Autism Strategy Network Event World Autism Awareness Week ESF – Promoting Sustainable Employment

Feedback from user involvement Richard Lewis & Meraud Davis

“Improving Autism Diagnosis in East Sussex” Martin Packwood

The problem Current services are set-up for diagnosing all referrals from the most simple to the most complex Multi-disciplinary team (MDT) of psychiatrists, psychologists and specialist nurse More referrals for diagnosis of autism are made each year than this team has the ability to complete A backlog of people waiting for an appointment has built up People can wait for over a year for their first appointment The Clinical Commissioning Groups (CCGs) in East Sussex recognised last year that this was not acceptable, and invited proposals from Sussex Partnership Trust to address the backlog and reduce waiting times.

“The Proposals” A new assessment and diagnosis service: MDT for more complex referrals (as now) New clinic for less complex referrals Based on learning from experience in West Sussex and Brighton and Hove One new specially trained Autism nurse for East Sussex: 4 appointments per person 2 hours per appointment The CCGs have agreed to fully fund these proposals (alongside others for ADHD).

“The Outcomes” New assessment and diagnosis service starts on 1st April 2016 Specialist Autism Nurse has been appointed Funding for new Consultant also agreed (joint with Brighton and Hove CCG) Backlog of people waiting will be cleared after approximately 40 weeks New referrals will then be offered a first appointment within 3 weeks Diagnosis will be completed within 12 weeks

Self-Assessment Framework Debbie Endersby

Self Assessment Framework Public Health England have issued the results of the 2014 Autism SAF: https://autism-connect.org.uk/users/myarea/# NHS England are inviting people to view the results in an “interactive trip adviser style” An opportunity for people and families to review and rate the results of their areas SAF. Autism West Midlands will monitor comments and ratings from users

East Sussex ratings

Ambers ratings Autism Partnership Board recognised the need to improve our: Recording and data collection Access to diagnosis pathways Improve engagement with Criminal Justice System

How we compare to other areas: The 2014 Autism Self-Assessment in South East

We welcome opportunities for feedback but . . . SAF online is for 2014 Detailed and lengthy document Ratings linked to specific criteria Things move on: Developments and challenges

Where are we now?

Coffee break

Self-Management Emma Jupp & Claire Turner

Start Well, Live Well, Age Well Working together for a healthier East Sussex STEERING GROUP PRIMARY PREVENTION EAST SUSSEX BETTER TOGETHER HIGH WEALD LEWES HAVENS CCG SELF-CARE SELF-MANAGEMENT TECHNOLOGY ENABLED CARE SERVICES

WHY? Enabling people to be empowered to take control of their own health needs and conditions is critical for managing demand on primary care services, secondary and community services. We believe that as part of the system-wide changes that are being implemented across East Sussex this will: - Support unnecessary hospital admissions Contribute to reducing length of stay in hospital Support discharge from hospitals Reduce GP appointments

IMPACT ON INDIVIDUALS Help to maximise independence Improve access to health care Better understanding and control of health issues Proactive support rather than reactive Increased ability and confidence to self-manage Prevent conditions from getting worse Enabling healthy routines that minimise deterioration Integrating technology solutions to support people remaining independent for longer

SELF CARE The actions people take for themselves, their children and their families to stay fit and maintain good physical and mental health; meet social and psychological needs; prevent illness or accidents; care for minor ailments and maintain health and well-being Executive Summary CCP for Self Care 1st Edition

Self Care - what this means Enabling people to access effective and personalised information, advice and support when and how they need it Supporting people the skills, tools and technology to manage their own care needs Empowering people to make choices for themselves and those they care for Preventing or delaying the need for formal assessed interventions wherever possible

Self Care solutions HSCC - Web chat support with information and advice about social care Health Help Now app - mobile app that helps people Autonomy - citizen and client portal enables people to find out if their support needs are eligible and access to online assessments One Space - One line directory of support in your area Online Triage and Social Care System- information healthy lifestyles services East Sussex Community Information System/ East Sussex Local Offer- detailing what is available for children and young people with special educational needs and disabilities Looking at ways of bringing all these solutions together to improve user experience

SELF-MANAGEMENT AIMS Providing support to people with physical long term conditions and co-morbidities Supporting the mental health needs of people who have physical long term conditions Designing a model which provides a number of support options for individuals Working with health professionals to deliver person centred care

SELF-MANAGEMENT PILOTS Health coaching Wellness Recovery Action Planning (WRAP) My Stroke Guide Infrastructure support to self-help groups

SELF-MANAGEMENT ENGAGEMENT Long term condition survey – closes 28th February Co-design workshops – April and May SELF CARE ENGAGEMENT Programme of small scale engagement with users and professionals- March – June 16 Start Well, Live Well Age Well summit- June 16

OVER TO YOU… How do you access information about services that can support you with: - Your autism/Aspergers? Your health needs? Your support needs?

http://eastsussex.healthhelpnow-nhs.net/

Autism Stress Cards Alice Parker Creator of Autism Stress Cards

Stress cards

Approaching Eastbourne Arndale Centre

Getting individual shops involved into the Arndale Centre

Contact us: Website: www.autismstressalert.org Email: autism.stress@yahoo.co.uk Facebook: Autism Stress Alert

Impact of the scheme Please meet Darran

Progress Report on Think Autism: The updated strategy for adults with autism in England January 2016 Richard Lewis - ESCC

The Report sets the aims of Think Autism within the context of Government Reform into 5 themes.

Delivering quality care to those who need it and making a positive impact on people’s health in an efficient way Progress and planning Training Transition from childhood to adulthood

A core part of health and care delivery Diagnosis

Making sure that people have good experience of care and services Innovation, awareness and technology Transforming care for people who have autism

Preventing people from having episodes of crisis Supporting people with autism

Joining up better the NHS, social care and other local partners Employment for adults with autism Contact with the criminal justice system

East Sussex Projects Heathfield Community College – facility for students with high functioning autism Spectrum: personal development courses

Next meeting Thursday 23 June 2016 10am to 12.30pm Eastbourne Sovereign Harbour Yacht Club Autism2@eastsussex.gov.uk