The Assessment of Burden of COPD (ABC)-tool

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Presentation transcript:

The Assessment of Burden of COPD (ABC)-tool Development and evaluation IPCRG 28-05-2016 Prof. Dr. Onno van Schayck Maastricht University

COPD is more than airway obstruction Introduction COPD is more than airway obstruction Ambition: Measure experienced burden of COPD and treat accordingly

Aim of this approach Provide patients with insight Raise awareness Match experienced burden to treatment Increase self management & shared decision making Provide structure during consultation Make a tailor made treatment plan

Previously presented and awarded during IPCRG research meeting in Singapore Process of the development of the Assessment of Burden of COPD tool, 6 steps 1. Defining burden of COPD 2. Formulating requirements 3. Reality check 4. Literature review 5. Development instrument 6. Evaluating instrument

CCQ (clinical COPD questionnaire) The ABC scale CCQ (clinical COPD questionnaire) Symptoms Functional state Mental state Adapted by adding questions about: Fatigue Emotions

Visual overview of integrated health status Possibility to monitor Additional parameters Lung function Exacerbations BMI Smoking Physical activity Treatment algorithm

Evaluation of the tool Presented last year: New this year: Psychometric properties ABC scale Validity Reliability New this year: Effect evaluation – Cluster Randomised Controlled Trial Qualitative evaluation – Experiences with the ABC tool

Cluster randomised controlled trial Pragmatic study to test effectiveness on: Disease specific quality of life – Saint George’s Respiratory Questionnaire (SGRQ) Statistically significant more patients with a clinically relevant improvement in intervention group Perceived quality of care - Patient Assessment of Chronic Illness Care (PACIC) Significant better score in intervention group compared to control group

Qualitative evaluation Amongst: Healthcare providers Patients Results: Excellent instrument that provides insight & structure Suggestion for improvement: Implementation in ICT systems “ It provides an overview of the patient at that moment, with a visual representation which is not debatable and instantly clear.” “ It takes more time, because you have to transfer data and information.” “ It should really be integrated in the healthcare systems.”

Next step Nationwide implementation in daily care Further development of a tool for other chronic conditions

Thank you for your attention!

References Slok AHM, In 't Veen JCCM, Chavannes NH, van der Molen T, Rutten-van Mölken MPMH, Kerstjens HAM, et al. Development of the Assessment of Burden of COPD tool: an integrated tool to measure the burden of COPD. NPJ Prim Care Respir Med. 2014; 24:14021 Slok AHM, In 't Veen JCCM, Chavannes NH, van der Molen T, Rutten- van Mölken MPMH, Kerstjens HAM, et al. Effectiveness of the Assessment of Burden of Chronic Obstructive Pulmonary Disease (ABC) tool: study protocol of a cluster randomised trial in primary and secondary care. BMC Pulm Med. 2014; 14:131 Slok AHM, Bemelmans TCH, Kotz D, van der Molen T, Kerstjens HAM, In 't Veen JCCM, Chavannes NH, Asijee GM, Rutten-van Mölken MPMH, Schayck, OCP. The Assessment of Burden of COPD (ABC) scale: a reliable and valid questionnaire. COPD: Journal Of Chronic Obstructive Pulmonary Disease. Published Online Jan 20 2016; 1-8.