Annual Spring Meeting April 5, 2017 7:00pm Welcome M. Everitt/R. Singh/J. Dreyer 7:10pm Steering Committee Report M. Everitt 7:15pm Pedimacs Report J. Kirklin 7:20pm DCC Update 7:30pm Database Committee Report M. Richmond 7:40pm Using Registrations as an Effective Platform for Conducting Clinical Trials K. Grady 8:15pm Web Based Data Entry System D. Koehl 8:30pm Foundation Update & Financial Roadmap C. Collum/R. Gajarski 8:40pm Break 8:55pm Scientific Committee Report Dipchand 9:05pm Scientific Committee Sponsored Workshops 9:10pm New Study Proposal Design S. Urschel 9:15pm Pediatric Heart Candidates Listed as Exceptions: Rising Trend After New Allocation Implemented R. Davies 9:35pm MATE Study Update K. Daly/C. Almond 9:40pm New Business 10:00pm Adjourn

Dr. Jacqueline Szmuszkovicz Dr. Jennifer Su Welcome New Centers! Children’s Hospital of Los Angeles Dr. JonDavid Menteer Dr. Jacqueline Szmuszkovicz Dr. Jennifer Su

Welcome Interested Centers! Benioff Children’s Hospital, San Francisco Mayo Eugenio Litta Children’s Hospital, Rochester Le Bonheur Children’s Hospital Nicklaus Children’s Hospital, Miami Royal Children’s Hospital, Melbourne National Cerebral and Cardiovascular Center, Japan

Nov. 2015 - Nov. 2017 Steering Committee Melanie Everitt, MD Marc Richmond, MD, MS Rob Gajarski, MD, MHSA Nancy McDonald, NP James Kirklin, MD Elfi Pahl, MD (2017-2018) Alfred Asante-Korang, MD Gerard Boyle, MD Kimberley Lin, MD President Vice President Past President Non Physician Representative DCC Representative Steering/Scientific Comm. Liaison Member at large

Nov. 2015 - Nov. 2017 Steering Committee Melanie Everitt, MD Marc Richmond, MD, MS Rob Gajarski, MD, MHSA Nancy McDonald, NP James Kirklin, MD Elfi Pahl, MD (2017-2018) Alfred Asante-Korang, MD Gerard Boyle, MD Kimberley Lin, MD President Vice President Past President Non Physician Representative DCC Representative Steering/Scientific Comm. Liaison Member at large Member at large Member at large

2017 Steering Committee Elections October 2017: Elect a new PHTS Vice President and Non-Physician Representative to Steering Committee Call for nominations August 1 -August 31 Voting open Sept 1-Sept 30 Winners announced at November meeting 3 new Members-At-Large will be selected from the rotating list of centers

2017 Steering Committee Elections October 2017, PHTS will elect a new Vice President and Non-Physician Representative. Vice President also serves as the Chair of the Database Committee. Vice President will rotate to President of the Steering Committee after 2 years term. President of Steering Committee rotates to Chair of Foundation after 2 year term. President of Foundation rotates to Past chair for one year.

2017 Steering Committee Elections October 2017, PHTS will elect a new Vice President and Non-Physician Representative. Non Physician Representative on Steering Committee also serves as Non-Physician Representative on Database Committee. This position serves a 2 year term.

Coordinator Focus Group Focus Group Session: Wednesday, April 4, 2017, 1:30pm Webinar planned for Fall 2017 Webinar planned for Fall 2018 In person coordinator session planned for April 2019. If interested in planning, contact Susanna Lenderman

2017 Leadership Visit to UAB January 23 and 24, 2017 Guests: President/Chair of Steering Committee: Melanie Everitt, MD Vice President/Chair of Database Committee: Marc Richmond, MD, MS Foundation Chair: Rob Gajarski, MD, MHSA Proposal Review Committee Chair: Simon Urschel, MD Scientific Committee Chair: Anne Dipchand, MD Scientific Committee Vice Chair: Elfi Pahl, MD

2017 Leadership Visit to UAB January 23 and 24, 2017 Steering Committee Goals 2017: Increase membership including expansion of more centers Facilitate practice guidelines workshops Increase funding support for meetings and/or reduce cost Plan Database Webinar for 2017 and 2018 Plan In-person Coordinator meeting 2019 Revision of QA Report including focus on more recent era data and other analyses such as severity of CAV Timely communication to membership regarding proposals and analyses

Upcoming Membership Meetings November 2017: Membership Meeting AHA Anaheim, California April 2018: No formal meeting in Nice, France November 2018: Membership Meeting AHA Chicago, Illinois April 2019: 25th Anniversary Gala in Orlando, Florida

25th Anniversary Gala PHTS began data collection in 1993 April 2019, we will celebrate 25 years of data collection Along with the ISHLT meeting, the gala will be held in Orlando, Florida Join the planning committee by contacting Susanna Lenderman