Why join a Local Dementia Action Alliance (LDAA)
Why take action on dementia? 850,000 people with dementia in the UK by 2015, soaring to over 2 million by 2051 £26.3 billion per year (£11.6 billion unpaid care) Two thirds of people with dementia live in the community 51% carers in work Equalities Act 2010 Dementia UK published September 2014 – most up-to-date dementia prevalence study. There are 850 000 people living with dementia in the UK. It costs the UK economy £26.3 billion a year. Dementia is not a natural part of the ageing process & no two people with dementia are the same – services need to reflect the needs of individuals. • Two thirds of people with dementia live in the community, and they, their family and carers are your existing or potential clients/customers. • 51% of people caring for someone with dementia are still in work and might need support from their employers. Some of your existing employees may also develop dementia. • The Equality Act 2010 recognises dementia as a disability. This means your organisation should make reasonable adjustments to avoid causing discrimination. • With your support it’s possible to enable people with dementia to live well. ________________________________________________________________________________________ dementiaaction.org.uk alzheimers.org.uk
National Dementia Declaration 2 Key messages for the wider community “I live in an enabling and supportive environment where I feel valued & understood” “I have a sense of belonging and of being a valued part of family, community and civic life” ________________________________________________________________________________________ dementiaaction.org.uk alzheimers.org.uk
What is a local Dementia Action Alliance? Organisations across England committed to transforming the lives of people with dementia and their carers A local DAA brings together regional and local members to improve the lives of people with dementia in their area. Everyone that people with dementia come into contact with including Council, NHS, Transport, Police, Fire, Ambulance, Shops, Leisure A local DAA is seen as the vehicle for developing a dementia-friendly community ‘alliance’ relates to process, and ‘community’ to outcome The Dementia Action Alliance is a movement with one simple aim: to bring about a society-wide response to dementia. It encourages and supports communities and organisations across England to take practical actions to enable people to live well with dementia and reduce the risk of costly crisis intervention. ‘alliance’ relates to process, and ‘community’ to outcome. I will if you will philosophy – not just asking others but actually doing Become a member by submitting an Action Plan. commitments vary from Bupa training 204 dementia champions, Age UK trailing dementia strategy in 9 care homes, British Psychological Society developing guidelines on alternatives to antipsychotics, the Design Council running a £350,000 design competition ________________________________________________________________________________________ dementiaaction.org.uk alzheimers.org.uk
Local Dementia Action Alliances How the programmes work together Dementia Friendly Communities Recognition Process Local Dementia Action Alliances Criteria 1 - Make sure you have the right local structure in place Criteria 2 - Identify a person or people to take responsibility for driving forward Strong independent chair – business, local authority, clinician, experienced volunteer Criteria 3 - Have a plan to raise awareness about dementia in key organisations and businesses Criteria 4 - Develop a strong voice for people with dementia living in your communities DEEP (Dementia Engagement and Empowerment Project) – 60 groups across the England Alzheimer’s Society User Involvement Panels or other member contacts Walkabout / surveys / talks / ‘dragons dens’ Criteria 5 - Raise the profile of your work to increase reach and awareness to different groups in the community Launches / ‘cake cutting’ Criteria 6 - Focus your plans on a number of key areas that have been identified locally Criteria 7 - Have in place a plan or system to update the progress of your community after six months and one year Dementia Friends ________________________________________________________________________________________ dementiaaction.org.uk alzheimers.org.uk
Why join? Be part of social movement Vehicle for creating a Dementia Friendly Community Access to resources Recognition Partnership working Guidance from national secretariat Be part of national campaigns To become part of the network that brings together members with a national and local footprint, working to improve the lives of people with dementia and their carers. It is the recommended model to working to become a dementia-friendly community - The DAA works closely with the DFC team and can provide coordinated guidance on how to become dementia friendly. Discuss PM’s Challenge Refer back to findings from ‘opportunity for change slide’ – Only 47% of survey respondents feel a part of their community. Be kept up to date with the latest developments on dementia friendliness et al. and have access to resources To be recognised and counted. With 113 Local DAAs and counting across England and over 2000 members, the DAA website has become the go to place to see where local DAAs exist and the types of work being carried out. Promote what your community is doing with the DAA so we can share good practice and make it easily accessible for all in one easy spot. Infrastructure is already set up with the DAA, avoid duplication & reinventing the wheel To receive guidance and information from the Secretariat Network, which comprises of all Local DAA coordinators, DAA Regional Leads and the National Secretariat. To feed into a wider network which provides peer support from other DAA Coordinators , examples of success stories and case studies, which can help your local alliance or steering group *figures as of 19th June 2015 ________________________________________________________________________________________ dementiaaction.org.uk alzheimers.org.uk
‘North Yorkshire Villages’ DDA ? Highlight shared issues PM’s Challenge on Rural Dementia Joint funding bids? Membership of local DAA
Join a social movement