ENFA European Network of Fibromyalgia Associations ivzw Overview of ENFA from the start till now. 2003 - 2017 www.enfa-europe.eu

ENFA European Network of Fibromyalgia Associations ivzw First meetings. Germany, the Netherlands 2002 2003 www.enfa-europe.eu

ENFA European Network of Fibromyalgia Associations ivzw September 2004 London ENFA official started and supported by United Kingdom, Scotland, The Netherlands, Switzerland, Denmark, Norway and France. www.enfa-europe.eu

ENFA European Network of Fibromyalgia Associations ivzw member countries at time (2008) include: UK Netherlands France Spain Germany Sweden Denmark Belgium Israel Italy Portugal www.enfa-europe.eu

ENFA European Network of Fibromyalgia Associations ivzw Fibromyalgia Global Impact Survey 2008 Presentation in the European parliament A survey sponsored by Pfizer executed by Harris Interactive www.enfa-europe.eu

ENFA European Network of Fibromyalgia Associations ivzw Written declaration www.enfa-europe.eu

ENFA European Network of Fibromyalgia Associations ivzw SIGN NOW Petition for a European recognition of fibromyalgia disease Fibromyalgia has been recognized by the WHO as a disease since 1992, as mentioned in the list ICO-10, M-79-7, even though it is still questioned by a number of medical professionals and some health authorities. Fibromyalgia is an invisible condition which is characterized by chronic pain and many symptoms, like morning myo-acampsia (morning stiffness), sleep disorder, a general tiredness, and fatigability of muscles. In Europe, 12 million people are affected! The reality of this situation, which affects all the European countries, is that the right of people affected by a chronic disease to have a good quality of life is being ignored. It is therefore called on the medical community, national and European policy makers: 1. To fight against the skepticism around this disease 2. To improve the quality of patients’ lives 3. To put in place an individual and interdisciplinary support programmes which allows the patient to stay economically and socially independent, and further avert any form of isolation 4. To ensure in-depth training of this subject in the mandatory courses of medical experts and medical professionals 5. To support and assist awareness programmes that will facilitate early diagnosis and early treatment, as well as access to care at any time. 6. To allocate the adequate aid for scientific research against this pathology 7. To put in place an EU programme on the exchange of best practices on Fibromyalgia With this petition, I am signing for a European Union in which the rights of 12 million people affected by Fibromyalgia are recognized. AN INVISIBLE CHRONICAL PAIN IS STILL A PAIN SIGN NOW by visiting our website on www.enfa-europe.eu www.enfa-europe.eu

ENFA European Network of Fibromyalgia Associations ivzw Trapped in pain www.enfa-europe.eu

ENFA European Network of Fibromyalgia Associations ivzw www.enfa-europe.eu

ENFA European Network of Fibromyalgia Associations ivzw DOD’s Awards www.enfa-europe.eu

ENFA European Network of Fibromyalgia Associations ivzw www.enfa-europe.eu

ENFA European Network of Fibromyalgia Associations ivzw SIP 2011 www.enfa-europe.eu

ENFA European Network of Fibromyalgia Associations ivzw General assemblies www.enfa-europe.eu

ENFA European Network of Fibromyalgia Associations ivzw EULAR www.enfa-europe.eu

ENFA European Network of Fibromyalgia Associations ivzw Video Poster presentation During PARE meeting 2015 www.enfa-europe.eu

ENFA European Network of Fibromyalgia Associations ivzw Monique Fibromyalgie

ENFA European Network of Fibromyalgia Associations ivzw Written questions on Fibromyalgia from 2008 About strategy, Research, Recognition, Awareness, Need for treatment / diagnoses, Social and economic exclusion,

ENFA European Network of Fibromyalgia Associations ivzw Thank you for your attention www.enfa-europe.eu