NOFAS CIFASD Education Component MARCH 8, 2016

Major Goals 1) increase awareness of the findings of CIFASD and of the overall significance of CIFASD and its research among diverse audiences 2) increase the use of CIFASD findings as the evidence-base for enriching public health prevention and clinical intervention strategies

Lectured to Medical, P.A., Nursing Programs The George Washington University, Washington, D.C. Georgetown University, Washington, D.C.  Howard University School of Medicine, D.C.

Partnering with CIFASD Researchers Presented a plenary at the University of New Mexico FASD Conference, Albuquerque, N.M.

Training the Trainers Presented to 25 representatives of the NOFAS Affiliate Network at the annual affiliate summit.

NABCA Partnership Presented to the education and marketing committees of the National Alcohol Beverage Control Association (NABCA) at their annual meeting in Des Moines, IA. 2016 Education and Training Jurisdictions: Virginia Maryland (Montgomery County)

Workshops Presented a day long workshop for the Maryland Child Welfare Academy Presented a two-hour workshop for the Chesapeake Employee Assistance Practitioners Association (EAPA), Washington, D.C. Presented a workshop at the InRecovery Magazine Expo and Gala, Prescott, AZ.

Internet Education Jeff Wozniak, PhD – Treating FASD with Nutritional Interventions – March 2015, NOFAS Webinar Series NOFAS presented a webinar for the American Indian Association (AIA). NOFAS presented a webinar for the Florida Alcohol and Drug Abuse Association. NOFAS taught a class via SKYPE for Denison University Psychology program.

Publications Mitchell, K. (2015). What I wish I’d known about alcohol & pregnancy. Healthy Mom&Baby, 2015(18), 52–53. Mitchell, K. (2015). A Ray of Sunshine. inRecovery Magazine, Fall 2015 (13), 22-23.

Publications Form

Publications Form

Publications Form

Congressional Briefing

Congressional Meetings Briefed aides to Senator Patty Murray and professional staff of the U.S. Senate Health, Education, Labor, and Pensions committee Briefed aides to Senator Lisa Murkowski, Congressman Don Young and Mike Honda Presented to Congressman Tom Cole and his health staff

NOFAS International Gala Ed Riley Claire Coles Ken Jones Michael Charness Ken Warren Sarah Mattson Tina Chambers Tatiana Foroud Jennifer Thomas Sara Jo Nixon SAB Miller (Ed Riley) Boston Fnd (Michael Charness)

NOFAS International Gala

Media January 2016 Washington Post Health section cover story on Kathy Mitchell Featured quotes from Ken Jones Story had 7 million views FASD was #6 trending topic on Facebook Picked up by media outlets worldwide Prompted print, web, radio, and TV coverage.

Reaction to Washington Post Article 773 reader comments Top Comments: Commended Kathy’s courage Shared a personal FASD-related story Debated the amount of alcohol safe to consume during pregnancy Argued about when it was known alcohol posed a risk to a pregnancy Questioned why there aren’t more FASD services Condemned Kathy for her choices in the past Attacked each other

Media Michael Charness and Tina Chambers featured in Self Magazine article The Doctors NY Daily News Chicago Tribune Huffington Post Popular Science Vancouver Sun Daily Mail (UK) Parents.com Sydney Morning Herald NDTV India SBS Australia Cosmopolitan NPR – Take Two NPR – AirTalk NPR – On Second Thought Alaska Daily News Parent Herald Inquisitir

Attitudes About Alcohol and Pregnancy – 2016 YouGov Poll

Information and Referral Requests

Media Tracking 2,000 articles coded

Opportunities for CIFSAD Scientists Video Segment for CIFASD and NOFAS websites Media Releases Media Training Access to FASD constituents Participation in social media events Develop materials for parents/providers for dissemination

De-Stigmatizing FASD Public Health Messages Fetal alcohol spectrum disorders (FASD) is an umbrella term describing the range of effects that can occur in an individual whose mother drank alcohol during pregnancy. NOFAS FINAL: Fetal alcohol spectrum disorders (FASD) is an umbrella term describing the range of effects that can occur in an individual who was exposed to alcohol before birth.   FASDs are caused by a woman drinking alcohol during pregnancy.  NOFAS FINAL: FASDs can occur in an individual who was exposed to alcohol before birth. Drinking alcohol during pregnancy can cause miscarriage, stillbirth, and a range of lifelong physical, behavioral, and intellectual disabilities. NOFAS FINAL: Prenatal alcohol exposure is associated with an increased risk of miscarriage, stillbirth, prematurity and SIDS, as well as a range of lifelong physical, behavioral, and intellectual disabilities.   FASDs are completely preventable if a woman does not drink alcohol during pregnancy. Why take the risk? NOFAS FINAL: FASDs are completely preventable if a developing baby is not exposed to alcohol before birth.

De-Stigmatizing FASD Public Health Messages There is no known safe amount of alcohol use during pregnancy or while trying to get pregnant. NOFAS FINAL: No amount of alcohol use is known to be safe for a developing baby before birth. When a pregnant woman drinks alcohol, so does her baby. NOFAS FINAL: A developing baby is exposed to the same concentration of alcohol as the mother during pregnancy. To prevent FASDs, a woman should not drink alcohol while she is pregnant, or if she might be pregnant. NOFAS FINAL: Make a plan for a healthy baby --don’t drink any alcohol if you are pregnant or could become pregnant. If a woman is drinking alcohol during pregnancy, it is never too late to stop drinking. NOFAS FINAL: If you become pregnant stop drinking alcohol. Every day matters. The earlier you stop drinking, the better for your baby. If you need help stopping, talk to your doctor, contact an addiction professional or Alcoholics Anonymous.

NOFAS Research Recommendations Long-term health outcomes for adults prenatally exposed to alcohol Pharmaceutical intervention protocol for individuals with an FASD Effects of preconception paternal alcohol use Breastfeeding risks for women consuming alcohol

Education Recommendations Initiate a campaign to address issues of stigma and shame surrounding FASD, alcohol use disorders, and addiction. Develop an FASD checklist for use by educators and service system entry points serving high-risk populations, with accompanying materials. Dissemination of diagnostic and other educational DVDs to physicians and other health care providers.