Deborah Piez, MS, LPC Dan Nieberding, MS, LCPC Sandra Sundeen, MS, RN An Evaluation of an Innovative, Collaborative Approach to Interfacing Research Systems with the Mental Health Community Deborah Piez, MS, LPC Dan Nieberding, MS, LCPC Sandra Sundeen, MS, RN

PRACTICE RESEARCH NETWORK CREATING THE PRACTICE RESEARCH NETWORK THE IDEA THE PLAYERS THE FUNDING – NIMH Research Infrastructure Support Project (IP - RISP) # 1R24MH082755

PRACTICE RESEARCH NETWORK CREATING THE PRACTICE RESEARCH NETWORK STAFFING NUMBER QUALIFICATIONS QUALITIES

INITIATION Goal: To develop collaborative relationships with research teams and the mental health communities PROVIDING: ACCESS TO RESEARCH EDUCATION AND INFORMATION RECIPROCITY

CREATING A NEW PARADIGM FOR RECRUITMENT OF STUDY PARTICIPANTS Merging PRN innovative services into an existing operational design of study team approach Focusing on local mental health authorities as a gateway to groups of potential participants Integrating advocacy organizations

Accomplishments So Far Introductions and partnerships with 24 local mental health authorities and the State mental health authority Collaborations developed with family, consumer, and other advocacy groups plus over 65 providers 11 studies represented by the PRN 587 PRN generated study referrals Behavioral Health Research web site created for Network of Care

EVALUATING THE PRACTICE RESEARCH NETWORK Rationale for the evaluation Method selected Populations surveyed: Consumers/Family Members/Advocates Local Mental Health Authorities/Service Providers Investigators/Study Teams

SURVEY DESIGN Three versions of the survey created Convenience Sample Providers/Mental Health Authorities: 9 items Investigators/Study Teams: 9 items Consumers/Family Members/Advocates: 10 items Convenience Sample Providers/Mental Health Authorities: Survey Monkey Investigators/Study Teams: Survey Monkey Consumers/Family Members/Advocates: Survey Monkey or hard copy

SURVEY RESPONDENTS Total Responses: 156 Consumers/Family Members, Advocates: 120 Mental Health Authorities/Providers: 32 Research Investigators/Study Teams: 4 Total Responses: 156

How helpful is the Practice Research Network to your organization? Correlations How much has your organization benefited from the Practice_Research Network? How helpful is the Practice Research Network to your organization? Have your experiences with the PRN liaison changed your opinion of research participation? Have your experiences with the Practice Research Network liaison changed your opinion of research participation? Correlation Coefficient 1.000 .789** .285 .472* Sig. (2-tailed) . .000 .176 .015 N 26 25 24 .305 .369 .139 .053 28 .317 .114 31 **. Correlation is significant at the 0.01 level (2-tailed). *. Correlation is significant at the 0.05 level (2-tailed).

MOVING FORWARD Lesson Learned: Next Steps: Consumers/Family Members/Advocates have a better understanding of research and indicate an interest in participating in studies Next Steps: Increase utilization of the Network of Care Behavioral Health Research Website through training Address stigmatizing attitudes towards research Increase involvement in all stages of the research process

MOVING FORWARD Lesson Learned: Next Steps: Providers who had contact with the PRN have found it to be helpful and beneficial to their organization Next Steps: Arrange for investigators to provide educational presentations including continuing education credits Keep providers informed about the outcome of research that has been conducted at their agency Enable providers to share ideas about potential research topics

MOVING FORWARD Lesson Learned: Next Steps: This was not an effective way to evaluate our relationship with Investigators and study teams Next Steps: Incorporate Investigator feedback into the PRN process Obtain feedback from organizations where data was collected Better role definition among the PRN, the Investigator, and the study team

For additional information please contact: The Practice Research Network Liaisons Deb Piez Dpiez@psych.umaryland.edu 410-646-0355 Dan Nieberding Dnieberd@psych.umaryland.edu 410-646-1302 Sandra Sundeen, Project Manager Ssundeen@psych.umaryland.edu 410-646-3253