Dementia Learning Session 20.7.17

Dementia Facts and Figures Dementia describes a group of symptoms: Dementia mainly affects people over the age of 65 and increases with age 1 in 14 people 65+ have dementia in the UK and 1 in 6 people are aged 80+. 1 in 5 people with a learning disability (LD) over the age of 65 develop dementia 1 in 3 people born in the UK this year will develop dementia in their lifetime. For those aged 65+ , almost 435,000 are diagnosed with dementia in England Dementia costs society an estimated £26 billion a year, more than the costs of cancer, heart disease or stroke. One million people in the UK will have dementia by 2025. This will increase to two million (146% increase) by 2050 People with LD who develop dementia, do so at a younger age. 1 in 50 people with Down’s syndrome develop dementia in their 30s, rising sharply to more than half of those who live to 60 or over One million people in the UK will have dementia by 2025 (35% increase)

Dementia facts and figures Dementia describes a group of symptoms: Dementia mainly affects people over the age of 65 and increases with age 1 in 14 people 65+ have dementia in the UK and 1 in 6 people are aged 80+. 1 in 5 people with a learning disability (LD) over the age of 65 develop dementia 1 in 3 people born in the UK this year will develop dementia in their lifetime. For those aged 65+ , almost 435,000 are diagnosed with dementia in England Dementia costs society an estimated £26 billion a year, more than the costs of cancer, heart disease or stroke. One million people in the UK will have dementia by 2025. This will increase to two million (146% increase) by 2050 People with LD who develop dementia, do so at a younger age. 1 in 50 people with Down’s syndrome develop dementia in their 30s, rising sharply to more than half of those who live to 60 or over One million people in the UK will have dementia by 2025 (35% increase)

Dementia Diagnosis Rate (DDR) Progress Brighton and Hove CCG May 16 Jun Jul Aug Sept Oct Nov Dec Jan 17 Feb Mar Apr Gap to Target +/-  64.16 %  64.84 %  64.88 %  65.52 %  66.87 %  67.17 %  65.25 %  66.38 %  65.78  66.34 % 66.4 64 64.3% 64.3 -2.4% Source NHSE National DDR is 66.7% . This equates to 1845 people in the city In June 2017,1780 people aged 65+ had a dementia diagnosis recorded Currently 2.4 % below the national target based on the estimated prevalence An additional 65 people need to diagnosed with dementia and recorded on GP systems for the national target to be achieved, if the NHS England predictions are correct The CCG dementia diagnosis rate has decreased following a change in how NHS England calculation methodology Change in methodology New methodology ensures the number of recorded diagnoses and the number of expected diagnoses will be drawn from the same group of patients. The new methodology will report a change to diagnosis rates for two reasons: a) The number of people resident in England is not the same as the number of people registered with a GP. This difference is particularly noticeable in, for example, university towns and areas with high rates of emigration. b) It is not possible to collect data from 100 per cent of GP practices. Previously this meant the number of recorded diagnoses was less complete than the number of expected diagnoses. The new methodology can adjust this for consistency

Dementia QOF – 2015/16 2015/16 QOF data shows that the city is : CCG ONS Comparators England The percentage of patients with a new diagnosis of dementia recorded in the preceding 1 April to 31 March with a record of FBC, calcium, glucose, renal and liver function, thyroid function tests, serum vitamin B12 and folate levels recorded between 12 months before or 6 months after entering on to the register 89.7% 75.0% 84.6% The contractor establishes and maintains a register of patients diagnosed with dementia 0.56% 0.72% 0.76% The percentage of patients diagnosed with dementia whose care plan has been reviewed in a face-to-face review in the preceding 12 months 77.0% 84.4% 83.8% % of registered population aged over 65 (June 2017) 13.0% 15.8% 17.3% 2015/16 QOF Prevalence and Achievement. Source: NHS Digital 2015/16 QOF data shows that the city is : IN THE TOP 10% of CCGs for recording results of blood tests that are pertinent to dementia IN THE BOTTOM 15% FOR dementia prevalence, 0.56% of registered patients are diagnosed with dementia, compared to other CCGs and England. The CCG is amongst the lowest 2% of CCGs in terms of face-to-face reviews of care plans. The CCG has a lower proportion of over 65’s compared to other CCGs and England

Possible Reasons for low DDR Patients don’t want to be assessed for dementia Patients decline a referral to the memory assessment service Dementia diagnosis incorrectly coded on practice systems Practice process for recording diagnosis is not properly established Practices not notified of a dementia diagnosis by the memory assessment service Expected prevalence is over estimated People with learning disabilities have not been assessed for dementia (especially people with downs syndrome) Under diagnosis of care home residents Other……..

The importance of earlier dementia diagnosis and recording Early dementia diagnosis is really important as it will ensure that : Patients Get an accurate diagnosis: A more accurate diagnosis is possible when a complete history can be taken early in the disease process, while the person is still able to answer questions and report concern Get timely treatment: Treatment of Alzheimer’s and other dementia-causing diseases is typically most effective when started early in the disease process. Appropriate treatment can stop or slow the rate of further decline.  Get the right support: Diagnostic and post diagnostic, social, therapeutic and financial: People diagnosed early in the disease process can take advantage of early-stage support groups and learn tips and strategies to better manage and cope with the symptoms of the disease.  Can plan for the future: An earlier diagnosis enables the person to participate in their own legal, financial, and long-term care planning and to make their wishes known to family members. . Can access appropriate benefits Their carers and family Get the right support  Can plan for the future Get the opportunity to learn and understand about the disease and develop realistic expectations

Dementia Services in Brighton and Hove