Understanding Stroke Trainer: Prior to conducting this training workshop, it is essential that you become familiar with both the facilitator manual and participant manual for the Living with Stroke (LWS) program. It is also vital to have a good understanding of the Facilitator Training Workshop materials and the way that the content and the exercises are designed to explain and build facilitation skills. Two trainers, or a trainer plus an assistant, are required to conduct this workshop effectively. To avoid confusion between this workshop and the LWS program, the individuals participating in the workshop are referred to as facilitators and the individuals participating in the LWS program are referred to as participants. Similarly, the training is referred to as a workshop, whereas LWS is referred to as a program. As you conduct this workshop, it is crucial that you engage the facilitators by modelling the facilitation approach you are teaching the facilitators. Therefore, wherever possible, break up the content review with questions asking for personal experiences and with examples from your own facilitation experience. Sample questions are provided for many areas, but you may wish to develop your own examples or questions as you prepare for the workshop. The more interactive the session and the more relevant the information to the facilitators, the easier it will be for them to understand the principles and the process involved in facilitation and to develop confidence in leading LWS. Facilitator Training Workshop, 2007

Topics Module 1: Understanding stroke Module 2: Physical changes and challenges Module 3: Swallowing and nutrition Module 4: Cognition, perception and communication Module 5: Emotions, roles and relationships Module 6: Reducing the risk of stroke and moving forward Handout page 2 Facilitator Training Workshop, 2007

Trainer: Introduce yourself using this slide as a guide Trainer: Introduce yourself using this slide as a guide. Ask all participants to do the same. Facilitator Training Workshop, 2007

This program includes Discussions and videos Strategies to deal with changes caused by stroke How to move on after your stroke

Ground Rules Call us if you can’t make it Confidentiality Respect (take time to listen to others, be patient and non-judgmental) continued…

Ground Rules Participate Bring a snack if you want Turn ringers off cell phones

VIDEO: Survivor Stories

Please introduce yourselves…

When was your stroke? 2011 2012 2013

INITIAL WARNING SIGNS OF STROKE

What were your warning signs of a stroke? Weakness Trouble speaking Vision problems Headache Dizziness Handout page 3

WHAT IS A STROKE?

Two types Cause determined by CT scan Handout page 4

Which type did you have?

A stroke can impact your ability to: Move Feel See Communicate Think Chew and Swallow Handout page 5

LEFT vs. RIGHT side of brain Handout page 6

HOW HAS YOUR STROKE AFFECTED YOU?

PHYSICAL

Movement / Muscles

Balance / Walking

Sensation

Sensation

Hearing

Vision

Vision

COMMUNICATION, COGNITION and SWALLOWING

Communication

Cognition

Swallowing

Eating

SLEEPING

Sleeping

Fatigue

EMOTIONS and ATTITUDES

Feelings

Feelings

Feelings

Feelings

PREVENTING ANOTHER STROKE

Risk Factors you CANNOT control Age Gender Ethnicity Handout page 7

Risk Factors you CANNOT control Family history Previous stroke or TIA Handout page 7

Risk Factors you CAN control High blood pressure Heart disease High cholesterol Handout page 8

Risk Factors you CAN control Diabetes Eating fatty foods Handout page 8

Risk Factors you CAN control Smoking Excessive alcohol consumption (9 glasses per week for women 14 glasses per week for men) Handout page 9

Risk Factors you CAN control Decreased physical activity Being overweight Stress Handout page 9

Role in Recovery Understand what a stroke is and WHAT CAUSED your stroke Understand what you can do to REDUCE YOUR RISK of stroke

Medications

Medications protect blood vessels from damage prevent formation of blood clots help control blood pressure lower cholesterol help control blood sugar

Medications

Do you have any trouble REMEMBERING to take your medication?

Do you have any trouble SWALLOWING your medication? Trainer: This is a good interactive and thought-provoking icebreaker. Ask each person to answer a question such as the following: What do these quotations mean to you? How do you think they apply to your role as a facilitator? Share your answer first to demonstrate. (Here’s an example: After hearing for a long time about the importance of healthy eating, I was able to change my eating habits because I changed the way I thought of food. Previously, I thought of food primarily as a pleasure. Now, I think of food primarily as fuel for my body. This change in thinking changed my attitude to food and eating and the way I shop for food and cook.) You may wish to have different people answer different questions to introduce some variety and stimulate discussion. Facilitator Training Workshop, 2007

Do you know the PURPOSE of each of your medications? Trainer: Review the objectives of the facilitator training workshop. Ask if there are any questions or clarification required for any points. Ensure that the group understands all the points. Facilitator Training Workshop, 2007

Blood Pressure It is important to check your blood pressure regularly and to know your blood pressure numbers 120 80

Do you take your own blood pressure?

Do you know your blood pressure numbers? 120 130 140 80 85 90

Recovery from stroke Since your stroke what changes have you made? What changes would you like to make?

My role in my recovery I do this now I plan to do this in the future Take medications Take blood pressure Eat healthy Handout page 10

My role in my recovery I do this now I plan to do this Exercise in the future Exercise Reduce stress See doctor regularly Handout page 10

My role in my recovery I already did this I plan to do this Does not in the future apply to me Quit smoking Limit drinking Lose weight Handout page 11

Recovery from stroke A stroke changes your life and your family’s life; need time to recover and adjust Effects of a stroke can be more noticeable when you are tired, depressed or unwell Most stroke survivors go on to lead full and meaningful lives

Recovery from stroke depends on: How much and which parts of your brain were damaged Your health before your stroke The work you do in rehabilitation The support you receive from family and friends

Role in Recovery People who take an active role in their recovery tend to do better

Acknowledgements Aphasia Institute Providence Healthcare