Involving people with a learning disability and family carers in quality checks Good Lives Leaders Presented by: Lauren Lewis (Leeds City Council) & Claire Nixson (Advonet)

Aim of the session: The workshop will cover: How the scheme was developed How the scheme evolved The schemes impact Lessons learned

Who helped design the project? People with learning disabilities Family carers Inclusion North The Chair of the Partnership Board (Cllr Ogilvie) CQC Advocacy Service providers In-house providers Joint Commissioning Service Adult Social Care Contracts Team Clinical Commissioning Group

Planning Together we devised the project and looked at Why we were doing it What we wanted to achieve What we could and couldn’t do Together we came up with the documents to use: Getting to know me sheets/One page profile explaining who we are Information pack (explains what we do) Reporting sheet (recording what we think)

Aim of the GLL scheme: The Good Lives Leaders Scheme will: give an independent, ‘expert by experience’ view of services for people with learning disabilities help services for people with learning disabilities look at ways to improve what they do and keep doing the good things   provide extra value to the checks currently done by the Council, the Care Quality Commission and Healthwatch Leeds

What is it about? It is about whether someone is having a good life or not (that is why the GLL’s chose the term Good Life Leaders) GLL are not inspectors – they are checkers  

Three key areas: A good place to live Being valued in the community or at work Support to have relationships and a social life

Training

Things to consider: Commitment from GLL – volunteers Cost Contact person and support

The Good Lives Leaders

How does it work in practice?

The Support Organisations

The de-brief meeting LCC plans a meeting every quarter with the GLL’s and support organisations and we: Plan the next visits Discuss the visits completed and the GLL report. The provider will have seen and been asked to provide any feedback on the report for the GLL’s which is also discussed. Discuss any changes to the scheme or any concerns Lunch!

The impact Has it made a difference? GLL’s have visited: 25 providers Which is a total of 85 services in Leeds Revisiting services The changes made include -

What is important? Thank the GLL ID badges Graduation Kitemark Get the GLL’s photo’s everywhere / recognition

Continued Involvement by the Council GLL – keep them involved Support organisations Providers Contracts and Commissioning Director of Adult Social Care

Changes: Make sure that any letters, agendas and minutes are in an accessible and easy read format Format of the meeting Report format Expenses and how these are paid Further training Knowledge refresh Revisiting services

Group Exercise Look at each scenario are feedback to us: Which ones do you think are REAL / NOT REAL How would you deal with that scenario?

Challenges: Meeting everyone's needs Managing expectations of what is good/poor practice Boundaries Confidentiality

Challenges cont.… The mix of characters Supporting GLL to conclusions Not having support workers being there Provider feedback

Next steps: Scheme for: Mental health Physical disability Sensory impairment

Further information & contacts Twitter #goodlivesleaders Meet the GLL’s Contact Lauren Lewis 0113 3783918 lauren.lewis2@leeds.gov.uk