Pff disease education webinar series

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Presentation transcript:

Pff disease education webinar series Welcome!

Pff disease education webinar series Ask A Doc Question and Answer Session

Ask A doc Presented by: Gregory P. Cosgrove, MD PFF Chief Medical Officer David J. Lederer, MD, MS PFF Senior Medical Advisor, Education and Awareness

Medical Disclaimer Please note that any information contained in this presentation is for informational and/or educational purposes only. It is not intended to be a substitute for professional medical advice. Always consult your personal physician or health care provider with any questions you may have regarding your specific medical condition.

PFF REGISTRY Please update us on the PFF Registry. Are you looking at familial links?

Diagnosis How is PF diagnosed when presenting symptoms look like asthma, bronchitis or other lung diseases?

Why does the diagnosis process take so long?

treatment What drugs are available to treat or prevent the progression of PF? How effective are they? Add pictures

Are there remedies that work for cough? treatment Are there remedies that work for cough?

How do you know when you should start testing for a lung transplant? Treatment How do you know when you should start testing for a lung transplant?

treatment Do stem cells help PF?

How do we gauge the progression of the disease? Disease progression How do we gauge the progression of the disease? 

Disease progression Are there indicators that the end is near?  Do you just not wake one morning or suffer with the lack of oxygen or heart attack? 

Types of ILD Can you talk more about NSIP diagnosis? My husband was diagnosed with it but is currently not taking any medication because his doctor believes he is “stable.” What should we watch for or expect?

Types of ild If one member of a family has pulmonary fibrosis, what is the likelihood that other members of the family will be diagnosed as well? What percentage of other family members will be diagnosed as well? Pictures

lifestyle Why does cold weather cause inflammation and distress versus hot weather for PF patients? How can you best prepare for winter weather and the cold? Any tips?

Lifestyle Are there any changes a PF patient should make to their diet? For example, eliminate red meat, stop drinking wine, reduce sugar intake? 

PFF Disease Education Webinar Series Thank you! Sponsored with the generous support of