2017 C.DIFF SUMMIT & NATIONAL STRATEGY MEETING Empowering Sepsis Advocates Thomas Heymann April 27th, 2017 Happy to be here. We have been at this for 10 years now so we have learned a lot and we’re still learning. Hope I can share some experiences that will helpful to your work to help save lives. Title was learning from volunteers - we think of it more of empowering our volunteer community

Sepsis Alliance | Sepsis.org ABOUT SEPSIS ALLIANCE Sepsis Alliance is a charitable organization founded in 2007, by Dr. Carl Flatley, whose daughter Erin died unnecessarily of sepsis when she was 23 years old. RELUCTANT VOLUNTEER does all 4 of the things we do - as a volunteer Nation’s first and largest sepsis advocacy organization Partnerships in place with leading industry, healthcare, advocacy, & government organizations Sepsis Alliance | Sepsis.org

Sepsis Alliance | Sepsis.org OUR MISSION Save lives and reduce suffering by raising awareness of sepsis as a medical emergency. Sepsis will impact 1 in 3 Americans in their lifetime Sepsis will kill 1 in 15 Sepsis Alliance | Sepsis.org

Sepsis Alliance | Sepsis.org VOLUNTEER ENGAGEMENT STRATEGY Empower volunteers to create change in our 4 areas of strategic focus: Public awareness and education Health provider education Legislative advocacy Survivor and family member support LIKE A POLITICAL CAMPAIGN RAISE AWARENESS Sepsis Alliance | Sepsis.org

Sepsis Alliance | Sepsis.org PUBLIC EDUCATION AND AWARENESS Salutations for Sepsis Give you some examples engagement opportunities can come in all shapes and sizes Sepsis Alliance | Sepsis.org

Sepsis Alliance | Sepsis.org PUBLIC EDUCATION AND AWARENESS Spike Out Sepsis 9th year Sepsis Alliance | Sepsis.org

Sepsis Alliance | Sepsis.org PUBLIC EDUCATION AND AWARENESS Volunteers hosting awareness tables at community events One of our volunteers from California at an event in her condominium community See she has all kinds of materials and she is a survivor so she is credible and very passionate = great representative Sepsis Alliance | Sepsis.org

Sepsis Alliance | Sepsis.org HEALTH PROVIDER EDUCATION Sepsis Alliance | Sepsis.org

Sepsis Alliance | Sepsis.org LEGISLATIVE ADVOCACY Faces of Sepsis contributor and Sepsis Alliance volunteer Karen Thieken was honored by Georgia governor Nathan Deal and Representative Chuck Efstration for her work raising sepsis awareness in the community. Sepsis Alliance | Sepsis.org

Sepsis Alliance | Sepsis.org SURVIVOR AND FAMILY MEMBER SUPPORT Faces of Sepsis survivor and tribute stories for those affected by sepsis www.sepsis.org/faces/ Sepsis Alliance | Sepsis.org

Sepsis Alliance | Sepsis.org ALL IN ONE Laura Messineo, RN, MHA, and SA board member hosts the annual Illinois Sepsis Challenge. Educates the public Educates and engages health professionals Engages lawmakers Provides community for survivors. Sepsis Alliance | Sepsis.org

Sepsis Alliance | Sepsis.org PRO TIPS Make it easy for individuals and communities to help raise awareness- “How You Can Help” drop down menu on sepsis.org Sepsis Alliance | Sepsis.org

Sepsis Alliance | Sepsis.org PRO TIPS Form partnerships with government groups, corporations, healthcare networks and hospitals Sepsis Alliance | Sepsis.org

Sepsis Alliance | Sepsis.org PRO TIPS Promote the activities Sepsis Alliance | Sepsis.org

PRO TIPS Recognize success and encourage involvement with shout outs Newsletter Sepsis Heroes gala

PRO TIPS Build community- share stories and materials to foster a growing knowledge and awareness of sepsis and its potentially devastating effects

PRO TIPS Embrace creativity

Sepsis Alliance | Sepsis.org VIRTUOUS CIRCLE: ENGAGING YOUR COMMUNITY ORGANIZATION COMMUNITY Board of Directors Survivors Family Medical Professionals Increased Support and involvement make us stronger Want to help Increase sepsis awareness. Introduce new potential supporters to organization. Act as ambassadors for SA. Inspire new wave of volunteers. Raise $ Host events. Reach personal networks. Share their story Successful Activities Sepsis Alliance | Sepsis.org

Sepsis Alliance | Sepsis.org PUBLIC EDUCATION - IN-HOSPITAL https://vimeo.com/147724426 This video is also running as a :20 PSA on HULU and we are adapting it into a radio PSA Great story to reinforce this idea of a virtuous circle because I met Marnie at a SIPS She and her husband supported the organization She shared her family’s story with the media She became a board member She is now a speaker out next Friday’s Salutations for Sepsis event in South Orange Sepsis Alliance | Sepsis.org

Sepsis Alliance | Sepsis.org THANK YOU! Q&A Sepsis Alliance | Sepsis.org

Sepsis Alliance | Sepsis.org CONTACT INFORMATION Thomas Heymann, Executive Director theymann@sepsis.org Sepsis Alliance | Sepsis.org