The Internet of Things and Consumer Wellness Wearable devices, mobile apps, and personal health records give consumers an unprecedented level of access and visibility to their own health information. How is the market growing and evolving, and what are the opportunities and obstacles to allow consumers to become full participants in their own healthcare? Hello – thank the Lt. Governor for his introductory remarks and reference something he said to the specifics of this topic. I was on a HIMSS panel focused on the topic of Standards and Interoperability just this Monday and the moderator segued to me by stating “We continue to see a greater push for interoperability around consumer-mediated exchange.” I said oh boy isn’t that the truth. Everyone is talking about the consumer in relation to HIT in so many different ways. Just last week ONC’s Dr. Flemming Aaron Seib National Association for Trusted Exchange
“I believe every American should have a single, unified electronic health record system that resides in the cloud and is under full control of the patient, of the individual, of the American.” -- John Fleming HHS Deputy Assistant Secretary for Health Technology Reform June 2, 2017 Dr. Fleming’s opinion not an official position of DHHS.
The Global IoT Ecosystem
Patient Generated Health Data can improve clinical outcomes as well –yet another source of data. Study: Real-time electronic symptom reporting helps cancer patients live longer Patients that electronically reported chemotherapy symptoms to their provider using a tablet or computer lived five months longer than those that reported symptoms during their monthly checkup with their oncologists, according to a study published over the weekend in JAMA. - http://jamanetwork.com/journals/jama/fullarticle/2630810
What Information Can I Get? “How can I manage all this data so that it is easy to share with my family and professional care givers?” STEP 1: What Information Can I Get?
Are you paying attention? Feds levy $155M fine against software vendor for faulty patient records
STEP 2: How Do I Get My Data? “My doctor says I should walk more so I don’t have another heart attack. How can I match up my wearable step counter with my blood pressure results to see if I’m making progress?” STEP 2: How Do I Get My Data?
A Use Case Specific Directory To Make Consumer Access Methods Discoverable
STEP 3: How Do I Manage My Data? “I am trying to do my best to manage my son on the Autism spectrum’s health information but he has five different doctors treating him and as many different portals for me to interact with”. STEP 3: How Do I Manage My Data?
A Trust Mechanism for API Based Exchange Harbor Secondary Market of App Endorsers Consumer Apps Provider’s Consumer Facing APIs Consumer apps register to TrustHarbor Verified endorsers apply signed software statements Access TrustHarbor via APIs to verify endorsements Enable dynamic registration of consumer apps that meet criteria Endorsers register to TrustHarbor Apply endorsements in a verifiable way TrustHarbor will facilitate trustworthy exchange at the intersection of consumer apps, provider’s APIs and validated endorsers.
TrustHarbor at a Glance UI that would allow consumer apps to register with the TrustHarbor Upon successfully registering, an app is assigned a unique identifier UI that would allow an endorser to register with the TrustHarbor Upon successfully registering, an endorser is assigned a unique identifier UI that would allow a registered endorser to select a registered app and apply their unique endorsement that only they manage The Table of Endorsements is exposed via API and providers’ systems are able to computably determine if a given app has sufficient endorsements to permit a particular transaction