Co-drivers and co-design: Commissioning for outcomes with patients and carers Macmillan Cancer Support in partnership with… Sharon King – Head of TCEOLC Programme Paul Giles – Patient and Procurement Champion Maggie Matthews – Patient and Procurement Champion Jo Judges – Strategic Partnership Manager Anna Lynall – Engagement Co-ordinator

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Working in partnership

Programme timeline

The context

In the beginning Local context Understanding the issues: National context – National Cancer Strategy and NHS Five Year Forward View Aspirational Challenging but achievable Appealing to the market Understanding the issues: Public Engagement Clinical Engagement Commissioner perspective – shared vision Bringing it all together Co-design of the outcomes framework

Maggie’s story The mobile unit was in my hometown of Leek at that time and I went along for a test Three months after my breast operation it was apparent that something new was happening.  At each hospital visit I drew attention to this and it took 9 months for someone to listen - they then sent me for a biopsy which confirmed Morphea - No one knew what to do! I sat there in silence, tears dripping down my chin When my consultant came back from maternity leave I saw her and I cried. I was so relieved to see her

“Systems are not joined up and it is too easy to fall through gaps “Systems are not joined up and it is too easy to fall through gaps. My husband says he wonders what would happen to someone who wasn’t as confident as I am and didn’t have the support that I have.”

Rewards and challenges of co-production with patients and carers No blue print Applying learning on the job Long process of co-design Media attention The pause – keeping momentum

Rewards Person-centred – fit for purpose Real-time feedback Wealth of experience Patient accountability

Outcomes based commissioning “Patient champions are patients (current and former), carers, bereaved people and members of the public who care about the future of cancer and end of life services in Staffordshire and Stoke-on-Trent. We have experience of the current system and recognise the need for a radical change in the way services are co-ordinated.”

Overarching domains – cancer care

Overarching domains – end of life care

Our learning Commissioners and patients working together Need to define the role of patients clearly No blue print Applying learning ‘on the job’ Long process to develop and co-design Responding to a changing NHS landscape Uniting Care reviews

Next steps Cancer procurement – evaluation completed, contract not awarded, as the bidder did not meet the required evaluation criteria Develop a revised plan to deliver the objectives through the Staffordshire and Stoke-on-Trent Sustainability and Transformation Plan and West Midlands Cancer Alliance Complete the end of life procurement process Ongoing patient engagement and involvement Establish a new board for cancer and recruit patient representatives as members

Contact details for presenters Sharon King: Sharon.King@stoke.nhs.uk Anna Lynall: alynall@macmillan.org.uk Jo Judges: jjudges@macmillan.org.uk http://www.staffordshirecancerandeol.com/