The SPLIT Project: Working Together with Disabled Experts to Improve Communication
Haringey Disability First Consortium presents The SPLIT Project By Mhairi McGhee Disability Representation Worker
Haringey Disability First Consortium Haringey Disability First Consortium
Haringey Disability First Consortium Haringey Disability First Consortium and a D.P.O
Disabled People’s Organisation D.P.O = Disabled People’s Organisation
Disabled People’s Organisation D.P.O = Disabled People’s Organisation We are run BY disabled people FOR disabled people
Elected Steering Committee Local Disabled people Want to improve disabled people’s lives Represent the broad demography of: the ‘disabled community’ the borough Elected by the members
Elected Steering Committee Local Disabled people Want to improve disabled people’s lives Represent the broad demography of: the ‘disabled community’ the borough Elected by the members
Elected Steering Committee Local Disabled people Want to improve disabled people’s lives Represent the broad demography of: the ‘disabled community’ the borough Elected by the members
Elected Steering Committee Local Disabled people Want to improve disabled people’s lives Represent the broad demography of: the ‘disabled community’ the borough Elected by the members
Elected Steering Committee Local Disabled people Want to improve disabled people’s lives Represent the broad demography of: the ‘disabled community’ the borough Elected by the members
Elected Steering Committee Local Disabled people Want to improve disabled people’s lives Represent the broad demography of: the ‘disabled community’ the borough Elected by the members
Elected Steering Committee Local Disabled people Want to improve disabled people’s lives Represent the broad demography of: the ‘disabled community’ the borough Elected by the members
Elected Steering Committee Local Disabled people Want to improve disabled people’s lives Represent the broad demography of: the ‘disabled community’ the borough Elected by the members
Our members Pan-diagnosis
Our members Pan-diagnosis Financial and social cross section
Our members Pan-diagnosis Financial and social cross section Many of our members benefit from ‘plain English’
Our members Pan-diagnosis Financial and social cross section Many of our members benefit from ‘plain English’ 60% of our members do not use email
Our members Pan-diagnosis Financial and social cross section Many of our members benefit from ‘plain English’ 60% of our members do not use email Request reasonable adjustments, lobby for accessible communications, demonstrate best practice......
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......but More and more access is dependent on the internet IT literacy as a Human Rights issue Reduces isolation, connects people, improve employability
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......but
......but Our secret weapon
Stroke survivor
Aphasia Stroke survivor
Aphasia Stroke survivor parent
Aphasia Stroke survivor parent Disability campaigner
Aphasia Stroke survivor parent Disability campaigner author
Aphasia Stroke survivor parent actor Disability campaigner author
Aphasia Stroke survivor parent Disability campaigner actor author HDFC Steering Committee Member actor Disability campaigner author
Aphasia Stroke survivor parent Disability campaigner actor author HDFC Steering Committee Member actor Disability campaigner author cyclist
Aphasia
Aphasia is the name given to a collection of language disorders caused by damage to the brain
User lead – Disabled Experts Effective and efficient The contacts The knowledge The experience The passion and drive
One-to-one learning a Stroke Survivor with Aphasia and a Speech and Language Therapy student
Drop-ins practice new skills, bring in equipment, ask questions, learn tricks from others
Feedback
Feedback Because its run by people with aphasia for people with aphasia it avoids a lot of explanation. They already know where you’re coming from. They’ve been there themselves
Feedback
Feedback To be part of this programme its exciting for us the support workers...coz you actually see the changes they went through... [from] not knowing where the internet explorer is, to coming in, logging in independently
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Feedback It helped me a lot of ways. I learnt email. I learnt facebook, I learnt youtube. I can do very skype (sic)
Feedback
Feedback Its all lead by the students, we’re there to support them but if the student wants to take a separate angle we’re there
Feedback
Feedback The first time my son phoned up... He’s sitting right in front of me. Its absolutely fantastic.
Feedback
Feedback To go on the computer and feel confident. Knowing not putting my bank details online, that was good. Before I was a very technical person. Its made me know that I can do it again.
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Feedback Course wise or content wise to be able to develop it a lot further. There’s so many different ways we could take this further. .. I think there’s a lot more opportunity for development
Feedback From the start to now seeing how far my student has come from the very beginning, its really good to kinda see that progress first-hand (sic)
Disabled experts design projects that work!
By Mhairi McGhee Disability Representation Worker mhairi@hwfonline.org.uk www.hwfonline.org.uk/about/disabled_peoples_organisation/ www.youtube.com/watch?v=hYEmYJlgzvI SPLIT film For HEAR Human Rights and Equalities Network Conference Working Together for Health Equalities