Surviving as a Survivor

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The Psychosocial Impact

Presentation transcript:

Surviving as a Survivor Vince Mosesso, MD Professor of Emergency Medicine University of Pittsburgh/UPMC

Disclosure of Potential Conflicts Medical director – Sudden Cardiac Arrest Association (no compensation) Research grant – Zoll LifeCor, Pittsburgh, PA (small grant) Advisory board – OxySure Systems, Inc, Frisco, TX (stock options)

Survivor survey (Abella,2008)

History of SCAA COPE Program SCAA Think Tank on Recovery and Rehabilitation after Cardiac Arrest (SCAA Headquarters, Washington, DC; April 2011) Survey of SCAA Survivor members (Sam Sears, Ph.D., East Carolina Univ, 2012) Publications based on survey data

Characteristics of SCA Survivor Respondents 188 (31%) of 591 survivors listed in SCAA registry responded Sears S et al. HRS 2013

Changes in health after the SCA General health Emotional health Quality of life Sears S et al. HRS 2013

Psychosocial concerns Immediately after arrest At time of survey Rank % Feeling depressed 4 47 2 25 Feeling anxious 1 63 32 Understanding the event 3 52 - Fear of physical exertion 53 23 Financial impact 22 Family emotional reaction 5 Becoming a “burden” 20 Sears S et al. HRS 2013

Gender Differences in Psychosocial Problems 3 Months after SCA Rosman et al, 2013

Cardiac anxiety Rosman L et al. Intl J of Cardiology. 2014

PTSD after SCA Rosman L et al. Eur J of CV Nursing. 2015

Sawyer KN et al, 2016

Sawyer KN et al, 2016

SCAA COPE Program: Cardiovascular Outcomes/Psychosocial Education From-To Guidebook Develop a FAQ for Survivors, Implantees and their families. This would be a “From Experienced Survivors and Implantees To New Survivors and Implantees Guidebook.” COPE DVD and Brochure for Patients The CD will inform patients that there are consequences to their arrest or implantation that may require support. A discussion about SCA and ICD implantation; COPE Section of the Website 800 # COPE line Chapter building Coordination with ICD Manufacturers Training

www.suddencardiacarrest.org

Susan Koeppen KDKA-TV News Anchor & SCA Survivor