Engagement, Resources, and Quality Improvement Lesley Breech, MD Comprehensive Fertility Care and Preservation Program
Engagement
Collaboration Optimal Outcome Oncology/ Endocrinology Care Managers Gynecology/ Surgery/ Urology/ REI PCP Care Managers Social Work Ethics Patient/Family Optimal Outcome Patient Navigator Leslie
Engagement of the Primary Team Be visible Various team meetings Gain information and network “Yes, we’d love to present to your group” Local, regional, national Lectures, social media, blogs, webinars, live-chats Take the initiative
Engagement of the Primary Team Be timely With communication With consultation With follow up Work toward fertility consultation becoming expected, not elective Establish as the standard approach Culture change helps to fuel the growth of the program
Make the existing culture work for you Leukemia/Lymphoma, Solid Tumor, Neuro-onc On the surface not so different – same guidelines, same players, etc Actually work very differently Need a system that is flexible enough to work with all teams but simple enough to understand Single access point (Fertility Navigator)!!! Look for the common denominator Care manager role exists in all teams Keepers of the new patient checklist
Institutional Engagement Institutional intranet highlights Program achievements Developments in the field Patient and Family Advocacy Area magazine highlights Radio broadcast Local news story broadcast nationally 2017 Faculty Clinical Team Award Recognize the contribution of all team members!!! Leadership recognition of “return on mission”
Initial Barriers to needed resources Lack of dedicated institutional support & oncology buy-in Financial Barriers Coordination of fertility care (No fertility navigator) Data management and electronic health record Tissue processing in pediatric facility OR logistics for fertility procedures Lack of Research Infrastructure Logistics of 3 oncology services + BMT
Overcoming Barriers Dedicated institutional funding secured Sound business plan Partnerships with other programs OncoFertility Consortium University of Cincinnati adult program Partnering with patient/family support groups Stupid Cancer Leverage divisional resources for additional support Philanthropic funds to support patient care costs
Facilitating Factors
Quality Improvement Science Partnered with the Anderson Center at CCHMC Experienced Quality Improvement Consultant embedded in team Consistently analyze data Every miss is a learning opportunity Use each instance to improve the quality of service Make yourself accountable Presented monthly at AYA & CFCPP Meeting Share with teams requesting consultation
Added 1 solids patient to January data
Added 1 OTC for Jan. 2016.
Comprehensive Fertility Care and Preservation Program at CCHMC Began with dedicated passionate team members Survived and grew due to diligence, passion of team and increased awareness inside and outside CCHMC Has become a national leader in the pediatric fertility preservation care delivery space